'My baby died of a virus I passed on to her in the womb – if I’d been tested she might have lived

The Sun has highlighted the case of 3 of our families who kindly shared their stories so that others might be more aware of CMV. It highlights the key facts about CMV, the work we do to try and spread awareness and shares...

midwife training

 A shout out to all student midwives, midwifery societies & midwifery tutors ....did you know that CMV Action are able to offer free virtual training sessions on congenital CMV (cytomegalovirus)?

Although, CMV is the most common virus passed from mother to baby during pregnancy...

Why do we need volunteers?

CMV Action is a small charity with only 2 part time employees but we potentially need to reach every one of the 750,000 women who give birth in the UK every year. Social media is a brilliant way to do this. We had great success during our National Awareness Month with reaching new people and...

The Sun has published Alicia Bell's story of her daught Scarlett helping to raise awareness of CMV and the importance of newborn screening.


Thank you to Alicia Bell for sharing the story of her daughter Scarlett. The Mirror newspaper has featured a full length article about Scarlett and the impact of CMV on the family. Like CMV Action Alicia is backing the petition to have all...

The lovely Harrison family kindly shared their story of their son Alfie with the I Newspaper. With June being International CMV Awareness Month 2021, this bring the focus onto the need for screening. Helen along with ourselves is calling on the Government to introduce routine screening of newborns for the condition to improve outcomes....

BATOD are supporting our campaign for newborn screening for CMV. They are asking their members to sign our petition.  Many thanks for your support.

The Midwifery Journal is supporting CMV Action and asking its members to sign our petition for newborn screening.

A great article for CMV Awareness Month.

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Thank you Kayleigh and Sharon, a heartbreaking story.

Starts at about 2hours 30 mins in to the programe.

Thank you Ellie Colton and Radio Sheffield.



Our Stories

September 2015   Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically... Read more
April 2011 Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she... Read more

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