Supporting Families and Health Professionals: Navigating CMV together

Resources, guidance and expertise.

CMV Action is committed to supporting both families and individuals affected by congenital cytomegalovirus (cCMV) and the health professionals who care for them.

We provide essential resources, guidance, information and one-to-one support to help families navigate the complexities of CMV, from diagnosis to ongoing support.   We also collaborate and work closely with health professionals to improve awareness and understanding, share best practices and promote the importance of prevention, early diagnosis and intervention.

Whether you’re a parent seeking support or a healthcare provider looking for information, our support services and resources are here to help you make informed decisions and deliver the best possible care.

Together we can improve outcomes for those affected by cCMV. 

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“The email service was invaluable after we were told our baby had tested positive for cCMV. We
got a very detailed reply very quickly, whereas the hospital avoided talking to us about it”

AnonCMV Action Family Survey 2024
“

“Just want to thank you for being there for parents and the wider family. I am a grandparent of a
child who was diagnosed with CMV when my daughter was roughly 19 weeks. You have been
there for them, so thank you so much for being there and trying to get the message out about the
condition”

Grandparent of Child with CMVCMV Action Family Survey 2024

Additional Support