Our Patron

We are delighted to have as our patron the leading expert on CMV in the UK.

Paul Griffiths

Paul Griffiths

Paul Griffiths is Emeritus Professor of Virology at University College, London. His research concerns cytomegalovirus infection, where he has helped to define the natural history and pathogenesis of this infection and used this information to design randomised controlled trials of antiviral drugs and prototype vaccines. He is Editor-In-Chief of Reviews in Medical Virology.

Our Trustees

Our organisation is headed up by our Trustees. Hard working and unpaid, they strive for CMV awareness every day…. 

Tom Kelman

Tom Kelman

Tom is a Chartered Accountant with over thirty years post qualifying experience. He currently works in the not for profit sector in senior finance roles and has been Honorary Treasurer to CMV since November 2013.

Lucy Kelly

Lucy is a mum of two and following a difficult first birth due to Group B Strep, Lucy became passionate about the importance of parental education and she became aware of CMV when she took part in the CMV RACE-FIT trial. With diverse professional experience, including a female health tech business, Lucy will be a positive and welcome addition to the Board.

Liz Estall

Liz Estall

Liz has been a Trustee and Support Volunteer since 2012 and one of her sons is affected by congenital CMV.

Sarah Dewar

Sarah Dewar

Sarah has been involved with CMV Action since 2011 when she started as a volunteer. She became a trustee in 2015 and Chair of Trustees in June 2019. Sarah has a son who had congenital CMV and is now an adult. She is also a support volunteer.

Amy Taylor

Amy Taylor

I first became aware of CMV when we learned that our unborn baby was seriously ill. I discovered CMV Action and called the helpline - the volunteers I spoke with were wonderfully supportive and knowledgeable. Our baby William died a few days later when I was 21 weeks pregnant.
I was astounded that a very common virus could have such an impact, especially when there are preventative measures parents can take to protect their babies whilst planning and during pregnancy.
I am very proud of the role I play with CMV Action, supporting the charity to reach our aims of educating parents and professionals about CMV. I also play an active role in supporting parents who have lost their babies, or who may be pregnant and are unsure of how CVM will affect their pregnancy and birth.

Angela Andrews

Angela Andrews

I am a registered nurse and midwife, currently working as a community midwife in the midlands. I became a trustee for CMV action in 2019 following a personal experience of CMV in pregnancy, whereby my son was then born with congenital CMV.

Suzie Mills

Suzie Mills

Suzie has been a Trustee for CMV Action since 20xx after her daughter was diagnosed with the virus after birth. She is the Communications Director at OXHR, an executive search organisation working in the for-purpose sector

Alice Fletcher-Etherington

Alice has recently completed a PhD in the molecular biology of cytomegalovirus from the University of Cambridge, and has been looking for ways to stay connected with the CMV community, to utilise her knowledge of CMV to raise public and political awareness of this little-known virus, and to help children and families affected by it. Alice is passionate about the application of scientific research to improve health and promote equality and we are delighted to welcome her to the CMV Action Team.

fundraiser for CMV ACTION

Graham Jones

Graham, a retired lawyer, has a personal interest in CMV as his granddaughter has developed profound deafness due to the virus. Graham and his family were shocked by the complete lack of information given to expectant parents about CMV and the amount of persistence required to obtain a diagnosis and treatment. We are delighted to welcome Graham as a new CMV Action Trustee.

Our Staff

We have two part-time members of staff:

Sharon Wood

Sharon Wood

Sharon joined CMV Action in October 2015 having previously enjoyed a long career in charity management.
Sharon is our Project Manager and is responsible for the day-to-day running of CMV Action as well as managing and developing CMV Action’s portfolio of projects,covering research, educating medical professionals, supporting families and an annual awareness-raising campaign. Sharon works closely with the Chair and Board of Trustees to plan and implement CMV Action’s strategic plan and enjoys attending conferences and training events offering an opportunity to speak to health professionals caring for pregnant women about how to reduce the risks of contracting the virus.

Sue McKinney

Sue McKinney

Sue is our Community Fundraiser and recently joined us from a background in marketing and PR.
Sue is keen to build on the much needed awareness of the CMV message and all the fantastic fundraising activities that our supporters do. Having done many fundraising events herself (even ones that seemed crazy at the time!), whatever fundraising ideas our supporters have, Sue is here to help every step of the way.
Without our wonderful donors and supporters we cannot continue to raise much needed awareness and give support to parents and families affected by CMV.

Our Volunteers

Our two volunteers are key to what we do:

Clare Kelly

Clare Kelly

I joined CMV Action as a volunteer in October 2020. I’ve worked in Finance for 20 years in my day job and now help CMV Action with the finances and assist the Treasurer Tom Kelman. Fortunately I’m not personally affected by CMV but I’m happy to help as It’s such a worthwhile cause.

Sharon Robinson

Sharon Robinson

Hi, I’m Sharon, I’ve worked with CMV Action previously as a trustee, now I’m volunteering with the social media accounts, whilst being a midwife, and a mummy to my two rainbow babies.
I had a stillbirth with my CMV baby, Oscar, back in 2015, so it’s a charity that I’ll always hold close, I’m helping them raise their public profile and awareness of this devastating infection.