CMV, or Cytomegalovirus, is a common virus that can infect people of all ages.  Most healthy adults and children will have no signs or symptoms and no long-term effects.  However, it can be very dangerous to unborn babies.  In fact, congenital CMV is one of the most common causes of birth defects in the UK.   Around 1 in 1000 children will be born with permanent disabilities as a result of CMV.  Despite this, there is very little awareness about this virus.  This can make it stressful and confusing for families coming to terms with a diagnosis and planning how best to support their children.

At CMV Action, we understand – we’ve all been there before.  This is a more common condition than many people realise and help is at hand from families who have been in the same situation.

It is nice to hear that there is a group out there that may be able to put me in touch with other families as I haven't met anyone that has experience of CMV

How we can help?

CMV Action is a UK organisation of parents and volunteers who have come together to support families and raise public awareness.

We offer advice, support and friendship to anyone affected by congenital CMV:

  • We can provide written information checked by experts so you know you can trust it.  We have worked with medical experts to provide you with helpful & accurate information about CMV
  • Download all the latest publications on our resources and publications page including our Pregnancy leaflet and CMV: Your Questions Answered.
  • We have a team of trained support advisers available on phone or email to talk through your experiences, whatever the age of your child
  • We are able to put families in touch with each other, who may be facing similar issues, as well as those who live near to each other
  • Our website is packed with information and stories
  • You can sign up for our quarterly newsletter to stay up to date with all the latest CMV news, including the latest research
Freephone: 0808 802 0030Email: