Supporting Families and Raising Awareness
At CMV Action, we know that families affected by congenital CMV need more—more support, more information, and more recognition of the challenges they face. Awareness of CMV is still far too low, meaning too many parents and carers are left navigating a diagnosis they’ve never heard of, with limited guidance and support. Whilst we have made progress in raising awareness and advocating for change, there is still much more to do.
That’s why we’re launching a new strategy to strengthen our charity and increase our impact. Over the next three years (2025-2028), we aim to:
- Grow our strategic and operational capability to better serve families and influence change.
- Increase engagement across the UK, ensuring more families, professionals, and decision-makers understand CMV.
- Strengthen our governance, building a resilient and effective organisation.
- Demonstrate our impact, using evidence and lived experiences to drive meaningful progress.
- Secure sustainable and diverse income, so we can continue supporting families now and in the future.
By focusing on these key areas, we are committed to making congenital CMV a priority in public health and ensuring no family faces this journey alone.
