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CMV Action Family Survey Results

By October 11, 2024No Comments

Conducted in July 2024, our Family Survey was an initiative aimed at families who have been affected by congenital cytomegalovirus (CMV).   

At CMV Action, we really value feedback from our community.   Listening to the needs of families affected by CMV allows us to understand the wider challenges faced by the CMV community.   Through connecting with our community, we can continue to improve our impact and drive meaningful change in CMV awareness, prevention and support.   

This latest survey was designed to gather feedback on CMV Action, our support services, our communication and to identify the needs of the families we support.  Feedback received has been essential to the development of our new three-year strategy (launching in 2025).  By taking the time to understand our families’ experiences and needs, we have been able to identify key areas for improvement and areas where our service offerings need to develop and grow to ensure that they align with what truly matters to those affected daily by the impact of CMV.   

This input will help us ensure that as an organisation, we are on the right path and focusing our efforts on supporting families, educating healthcare professionals and raising awareness of CMV with the general public.   

Thank you to everyone who took part

76

of respondents said they were a direct carer of a baby or child affected by cCMV

98

of respondents would recommend CMV Action to another family in a similar situation

37

sought information from our website and/or downloaded resources