Our Stories

     
I found out I was pregnant just after my 21st birthday in May 2003. I wasn't sick or felt ill. As far as I knew, the pregnancy was going fine. As this was my first pregnancy, I didn't really know how it should feel. On Jan 29th, 2004, I woke up and had the strangest feeling. I felt like I had to go to the hospital straight away, I didn't...
January 2009 My wife’s twelve week scan showed two little people waving at us, practically sat side by side!! I blinked thinking my eyes were blurred... and then told the sonographer that there was something wrong with the screen.  We were then congratulated for being expectant parents of identical twins.  My initial thoughts, I...
Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home. The doctor came round he had a purple rash under his skin an enlarged liver and spleen and was shaking has his blood sugars were low. We had to stay for more...
March 1999 Hi, I am Alicia Parks, I am very happy. Despite all my problems, I am very socially aware, alert young lady, and very mischievous. My mum and dad are Mandy & Neil. (I cannot write but I think this is what I would want to say) My mum and dad waited 14 years for me and say I am a “precious gift” that has given them a road no...
Anna Rose
December 2013   On 27th December 2013 at 6.31am, our beautiful baby Anna Rose was born. 7lb 2.5oz of pure scrumminess, we were elated to have a little girl to add to our family. On the surface, she seemed healthy. We were kept in overnight as her blood sugars were a little low and her temperature dipped a little, but other than this nobody...
It all started on the day of my 20 week scan which was also the day of my 20th birthday, the worst day of my life. I never had any worries as I had a straightforward 12 week scan, and had also recently felt him starting to move around. That had changed at my 20 week scan. There was very low amniotic fluid, the...
  May 2011   Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only thing that Ava was affected with as a result of CMV. Ava was our second born daughter in May 2011. My pregnancy was fairly...
Ava_P_CMV
Sept 2011 I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and she would have learning difficulties, and we were referred to UCH hospital in London.    That crushed me - her brain. There's nothing...
In January 2019, I caught a severe chest infection which then turned into mild pneumonia. I was in and out of hospital for two weeks as I was so fatigued.   I then found out I had conceived in December 2018.  Living in Cyprus at the time, my doctor suggested I take several blood tests as a routine check to make sure my blood...
Ben
Ben
On the 19th of March 2015, our little angel Ben was born sleeping at 30+5 weeks weighing 3lb 12&1/2 oz. We had a really healthy pregnancy but after a day of reduced movements & braxton hicks at 27+5 weeks I visited my maternity day unit to be monitored, which was fine, & sent for a scan for reassurance! At the scan it showed Ben to...
May 1992 When Ben was born he was surrounded by doctors, so alarm bells immediately started ringing. The doctors didn’t really know what they were dealing with. They didn’t test for CMV and information on CMV at the hospital was at least 20 years old. The only reason he was eventually tested for CMV was down to an Australian doctor on...
Braden-10days-old
June 2012 I was 14 weeks pregnant when my husband showed me a full torso rash that he had. I was already aware that my immunity to Rubella had dropped so sent him off to the Doctors straight away. We were told to quarantine ourselves for a few days and then a week later we got the results back that my husband had contracted CMV. The...

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Our Stories

March 1999 Hi, I am Alicia Parks, I am very happy. Despite all my problems, I am very socially aware, alert young lady, and very mischievous. My mum and dad are Mandy & Neil. (I... Read more
September 2014 So here's our story - I'm from the UK. I fell pregnant with my first baby back in 2015, I was over the moon everything seemed to be going fine and smoothly until my 20... Read more

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