Story by mum Tilly Hawkes. Ada was born in 2019 and is now 3.
Ada is profoundly deaf due to CMV. It is a wonderful part of who she is and I wouldn’t change her for the world. She is being assessed and monitored for potential disorders but through it all she has remained her beautiful little self. Learning to live with the possibility that our gorgeous children could suffer more than most is hard. But: it also brings joy that we wouldn’t otherwise experience. Every little milestone becomes a major celebration. There is joy in the face of fear and pride in the face of disability. And for us there is hope.