About CMV Action

     

CMV Action is a UK organisation of parents and volunteers who have come together to raise public awareness of Congenital CMV and to campaign for better prevention measures within our health service.

We offer advice, support and friendship to anyone affected by Congenital CMV. We are able to put families in touch with each other who may be facing similar issues or live nearby.

We advocate for families affected by Congenital CMV and support them in ensuring that they receive the best possible service from their healthcare, education and social work providers.

We work with a number of medical professionals who have an interest in Congenital CMV and we support much needed research in this field. We aim to publicise any new CMV research findings via our website and social network pages.

Research is currently under way for a CMV vaccine and it is our hope that, one day, it will become widely available. As part of our campaign we continue to stress the need for a vaccine to health professionals and policymakers by highlighting the devastating impact of CMV.

Our organisation is run by our Trustees. Hard working and unpaid, they strive for CMV awareness every day....
Our mission is to limit the devastating impact of CMV  for those currently affected and for future generations. Educate, Vaccinate, Eradicate. Our...
Kimberley-Walsh-CMV-Patron
CMV Action are honoured to having the following patrons:
CMV Action is part of the CMV Advisory Group.  Its members are: Professor Mike Sharland: Professor of Peadiatric Infectious Diseases, St George's...
2016 Annual Report 2015 Annual Report 2014 Annual Report  
     

Our Stories

  In 2015 we lost our daughter Leia to cmv. This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).   Most people have... Read more
We found out in January 2017 just after Gabe’s first birthday that he had Congenital CMV.  I had a great pregnancy and a delivery with no problems. However he was born with tiny purple... Read more

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Registered charity no: 1171773