Education and Health Care Information

     

At CMV Action we aim to provide information and support to families. We empower parents to work effectively with professionals and advocate on behalf of families affected by CMV.

There are many charities and groups that can help you.

http://www.adviceguide.org.uk/

Self help from the Citizen’s Advice

http://www.ipsea.org.uk/news/2014/education-health-and-care-plan-checklist

Checklist for Education and Health Care Plans
 

Cerebra aims to improve the lives of children with brain related conditions. They have information and leaflets and can help with completing DLA forms, grant applications, attend meetings with you, and share local knowledge on dealing with educational issues and accessing services.

http://www.ndcs.org.uk/

The National Deaf Children’s Society (NDCS) is the leading charity for deaf children and young people. They provide impartial information and individual advocacy on every aspect of childhood deafness. They can help with welfare rights and benefit claims, making education choices, advising on health, audiology and technology.

http://www.cafamily.org.uk/know-your-rights/

Help with entitlement to benefits and services.

http://www.scope.org.uk/support

Disability information, support and services.

http://www.sossen.org.uk/

Independent helpline for SEN

http://resources.ncb.org.uk/htmlemails/3c9a546d-80e0-46d7-99fe-c9a70a942944.html

Help and advice on short breaks

 

 

If you have received help from a charity or organisation please let us know and we can add them to the list.

     

Our Stories

Ava_P_CMV
I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and... Read more
Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and... Read more

Latest Events

Sunday 10 September

Registered charity no: 1171773