Education and Health Care Information

     

At CMV Action we aim to provide information and support to families. We empower parents to work effectively with professionals and advocate on behalf of families affected by CMV.

There are many charities and groups that can help you.

Self help from the Citizen’s Advice

Checklist for Education and Health Care Plans
 

Cerebra aims to improve the lives of children with brain related conditions. They have information and leaflets and can help with completing DLA forms, grant applications, attend meetings with you, and share local knowledge on dealing with educational issues and accessing services.

The National Deaf Children’s Society (NDCS) is the leading charity for deaf children and young people. They provide impartial information and individual advocacy on every aspect of childhood deafness. They can help with welfare rights and benefit claims, making education choices, advising on health, audiology and technology.

Help with entitlement to benefits and services.

Disability information, support and services.

Independent helpline for SEN

Help and advice on short breaks

 

 

If you have received help from a charity or organisation please let us know and we can add them to the list.

     

Our Stories

Mia
Hello, this is Mia, she is 6 months and 2 weeks old and I got diagnosed with cmv when I was 6 months plus pregnant. It was a horrible time we only found out as I got really poorly and could... Read more
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid... Read more

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