Education and Health Care Information


At CMV Action we aim to provide information and support to families. We empower parents to work effectively with professionals and advocate on behalf of families affected by CMV.

There are many charities and groups that can help you.

Self help from the Citizen’s Advice

Checklist for Education and Health Care Plans

Cerebra aims to improve the lives of children with brain related conditions. They have information and leaflets and can help with completing DLA forms, grant applications, attend meetings with you, and share local knowledge on dealing with educational issues and accessing services.

The National Deaf Children’s Society (NDCS) is the leading charity for deaf children and young people. They provide impartial information and individual advocacy on every aspect of childhood deafness. They can help with welfare rights and benefit claims, making education choices, advising on health, audiology and technology.

Help with entitlement to benefits and services.

Disability information, support and services.

Independent helpline for SEN

Help and advice on short breaks



If you have received help from a charity or organisation please let us know and we can add them to the list.


Our Stories

It all started on the day of my 20 week scan which was also the day of my 20th birthday, the worst day of my life. I never had any worries as I had a straightforward 12... Read more
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I... Read more

Registered charity no: 1171773