Education and Health Care Information


At CMV Action we aim to provide information and support to families. We empower parents to work effectively with professionals and advocate on behalf of families affected by CMV.

There are many charities and groups that can help you.

Self help from the Citizen’s Advice

Checklist for Education and Health Care Plans

Cerebra aims to improve the lives of children with brain related conditions. They have information and leaflets and can help with completing DLA forms, grant applications, attend meetings with you, and share local knowledge on dealing with educational issues and accessing services.

The National Deaf Children’s Society (NDCS) is the leading charity for deaf children and young people. They provide impartial information and individual advocacy on every aspect of childhood deafness. They can help with welfare rights and benefit claims, making education choices, advising on health, audiology and technology.

Help with entitlement to benefits and services.

Disability information, support and services.

Independent helpline for SEN

Help and advice on short breaks



If you have received help from a charity or organisation please let us know and we can add them to the list.


Our Stories

Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically from previous growth... Read more
I fell pregnant with my beautiful daughter Megan in 2009. There were a few minor complications with my pregnancy as I am rhesus negative so I was getting used to being in and out of... Read more

Registered charity no: 1171773