On-going management of congenital CMV will depend on how your child has been affected by the virus. Even for children with no obvious signs at birth, if congenital CMV has been diagnosed they will need to be monitored in their early childhood to check for any symptoms which may develop over time, such as hearing loss.
Long-term follow up
All children born with congenital CMV should have their growth and development regularly monitored. You should be offered:
- A hearing assessment every three to six months until the age of three and then yearly until six years old (NDCS Guidelines). This is particularly important as hearing loss is often progressive and may get worse over time. If your child is affected by hearing loss, they may be offered hearing aids, or in some cases cochlear implants. You should discuss these options with the Audiologist (hearing specialist).
- A clinical assessment by a paediatrician at around one year old to check that their development is as expected. Ongoing follow-up with a paediatrician will be required for some children.
- Children with more severe symptoms should be regularly monitored by a paediatrician while they are being treated, then seen at least annually until the age of two. They should also have a neurodevelopmental assessment at one year. This will help to diagnose any problems with the development of the brain and nervous system.
- Some children will be recommended to have an annual eye test up to the age of five. This will be guided by an ophthalmologist.