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  1. Orla

    July 2018 Our Story – Orla and Cytomegalovirus. On the 2 nd July 2018 my wife ... was unremarkable (at least as much as such a thing is) and Orla was born shortly after we arrived in hospital. We now ... Of course the following story does not change that and Orla is the same person she was when she arrived and will be ...

    jan - 24/11/2018 - 10:19am

  2. 2018 -2020 Henry - Orla's Ultra Project

      'Our daughter Orla was born with CMV. She is deaf in her right ear with ... 15,500m ascent. (May 2021).     2018 -2020 Henry - Orla's Ultra Project ...

    jan - 24/11/2018 - 10:12am

  3. 2019 06 Henry - La Sportiva Lavaredo Ultra Trail 120 km

    ... not for the faint hearted! Henry says - 'Our daughter Orla was born with CMV. She is deaf in her right ear with ...

    jan - 22/05/2019 - 12:58pm

  4. 2019 09 - Matt Brown and friends - Madeuptriathlon!

    You couldn't make this up...

    Well they did... Rupert, Tom and Tim. They swam the Hurly Burly open water event in 2018 and then decided that, as they were near the Snowdonia National Park, next year after the Hurly Burly 2019 swim, they'd then bike to the foot of Snowdon and following that run up to the summit and back. There it was a Made Up Triathlon!

    jan - 09/08/2019 - 1:45pm

  5. 2018 11 Luke Cousins - Run Rocky Run - Philadelphia Marathon

    ... my family’s attention, my sister's beautiful baby girl, Orla, was born with hearing difficulties and scans showing ... therefore it is critical we bring its existence to light. Orla will forever receive all the love and care in the world ...

    jan - 23/09/2018 - 4:51pm

  6. 2019 06 Alex - La Sportiva Cortina Ultra Trail 48 km

    ... His friends, Henry and Hannah have a lovely little girl, Orla, affected by the cmv virus. Please support Alex and CMV ...

    jan - 22/05/2019 - 1:06pm

  7. iOLlifestyle covers CMV - Women warned of the CMV Virus

    iOLlifestyle covers CMV.

    Pregnant woman warned of dormant virus

    July 7 2015 at 12:32pm 

    Read the full article here -

    kat - 07/07/2015 - 6:00pm

  8. 2019 06 St Albans Half Marathon Martin Cook

    ... had their third child this summer, a little girl called Orla.  They discoverved she has hearing difficulties and ...

    jan - 09/11/2018 - 12:31pm

Our Stories

Siân was born on 11th March 1980, apparently normally after a normal pregnancy. She was small for birth-weight but this was not felt to be a problem – it runs in the family. The first few... Read more
September 2014 So here's our story - I'm from the UK. I fell pregnant with my first baby back in 2015, I was over the moon everything seemed to be going fine and smoothly until my 20... Read more

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