Support

Need to talk?  Have a question?  Our Support Team are here for you…

How we can help

At CMV Action we understand just how difficult a diagnosis of CMV can be for your family. The early days following diagnosis can be bewildering and upsetting. As your child gets older they may face new challenges as a result of the virus.

This is why we provide our community with a very personal support service:

  • A named individual at the end of the phone, email or private message on social media
  • A team of volunteer support advisers all have experience of congenital CMV. They are here to talk to you about your experiences, point you in the direction of further information and advise wherever possible
  • Peer to Peer support via our Facebook and WhatsApp Communities 

Please contact us by phone if your support query is urgent.

Contact a support advisor by:

Response time

Please be aware that this is a free service is provided by volunteers.  Although we will try and respond to your enquiry as soon as possible, we may not always be able to do so straight away.

We will aim to get back to you within three days. If it is urgent please phone 0808 802 0030 and leave a message if your call is not answered straight away.

Our volunteers are not health professionals but we do have medical professionals that we can refer to if necessary. However, all our volunteers have lived experience of cCMV and they will happily support you through decisions you need to make and talk about your experiences and concerns as well as their own experiences.