Our Stories

     
Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and so he was born by emergency caesarean section. In the seconds he arrived into the world, the delivery room was filled with firm shouts of “he’s covered in a rash...
  In 2015 we lost our daughter Leia to cmv. This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).   Most people have flu like symptoms, I had none. I will always have CMV, as long as I'm healthy it will stay dormant. My OB said you can be tested but you have to ask. My reply...
Hi, I am Alicia Parks, I am very happy. Despite all my problems, I am very socially aware, alert young lady, and very mischievous. My mum and dad are Mandy & Neil. (I cannot write but I think this is what I would want to say) My mum and dad waited 14 years for me and say I am a “precious gift” that has given them a road no parent would ever...
Charlie
CMV has left four-year-old daughter Charlie facing a future without her hearing. Charlie’s Mum Lindsey had never heard of CMV during either of her pregnancies, yet she contracted the common virus which has caused her little girl to battle severe deafness.  Although never actually being diagnosed at birth, Charlie was a small birth weight...
My wife’s twelve week scan showed two little people waving at us, practically sat side by side!! I blinked thinking my eyes were blurred... and then told the sonographer that there was something wrong with the screen.  We were then congratulated for being expectant parents of identical twins.  My initial thoughts, I need more car...
On the 27th June 2006, when Christian was born I remember the sheer delight on my husbands face, as we had our boy. He would be Eve's little brother who would be 2 the following day. Within 24 hours it became apparent that our new arrival was poorly.  He had developed jaundice and was moved to special care.  He was given light therapy...

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Our Stories

Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home... Read more
Our Story – Orla and Cytomegalovirus. On the 2nd July 2018 my wife Hannah went in to labour, it was unremarkable (at least as much as such a thing is) and Orla was born shortly after we... Read more

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