Our Stories

     
Everything had been going fine with my pregnancy until the 18-week scan. Then I was told I had my dates wrong and they put me back by 5 weeks, originally it was August 15th, now it was September 29th. I was a bit upset about this, as we had been trying for a baby and I was positive about my dates. Still, at least it gave us a bit more time to...
Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home. The doctor came round he had a purple rash under his skin an enlarged liver and spleen and was shaking has his blood sugars were low. We had to stay for more...
On the 27th June 2006, when Christian was born I remember the sheer delight on my husbands face, as we had our boy. He would be Eve's little brother who would be 2 the following day. Within 24 hours it became apparent that our new arrival was poorly.  He had developed jaundice and was moved to special care.  He was given light therapy...
Charlie
CMV has left four-year-old daughter Charlie facing a future without her hearing. Charlie’s Mum Lindsey had never heard of CMV during either of her pregnancies, yet she contracted the common virus which has caused her little girl to battle severe deafness.  Although never actually being diagnosed at birth, Charlie was a small birth weight...
Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant brother, Oliver 13. We all live in Hailsham, East Sussex. I'm a teacher and Danny is a contracts supervisor for a mechanical heating and ventilation company. Unfortunately...
My son was born at 12.18am on the 28th July 2013 after what I thought had been a normal pregnancy. I got to Ipswich Hospital where I was preparing to give birth at around 11pm. During examination the midwife felt limbs so they scanned me to find it was his feet, the midwife pressed the alarm button. As quickly as possible they took me for a...

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Our Stories

We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid... Read more
Evie_CMV_5
My name is Alex and this is the story of how I came to learn about CMV. January 13th 2014, I was stood staring at the positive pregnancy test in my hand. After 5 months of trying for our... Read more

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