Our Stories

     
Megan_and_Mum
I fell pregnant with my beautiful daughter Megan in 2009. There were a few minor complications with my pregnancy as I am rhesus negative so I was getting used to being in and out of hospital. However, on my 20 week scan they told me that a ‘yellow blob’ had shown up on the scan and that I would need a specialist scan with a consultant. They...
Matilda – Mighty in Battle. The meaning of the name Matilda is "mighty in battle". So, when our second daughter was born on September 23rd, 2012, it wasn't any coincidence that we named our daughter Matilda.  She is our mighty warrior. Matilda had contracted a virus called Congenital Cytomegalovirus (CMV). CMV is a common birth...
  In 2015 we lost our daughter Leia to cmv. This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).   Most people have flu like symptoms, I had none. I will always have CMV, as long as I'm healthy it will stay dormant. My OB said you can be tested but you have to ask. My reply...
Hi, I am Alicia Parks, I am very happy. Despite all my problems, I am very socially aware, alert young lady, and very mischievous. My mum and dad are Mandy & Neil. (I cannot write but I think this is what I would want to say) My mum and dad waited 14 years for me and say I am a “precious gift” that has given them a road no parent would ever...
Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It was an easy pregnancy and Lucy was booked in to the local birthing centre. The delivery went well but as soon as Lyra was born it was evident she was a very sick...
Luca was born on the 7th of January, 2007, just one day early, weighing 5lbs 6oz. Normal delivery and everything seemed ok. It wasn't until Luca was just over 6 months old (July 07) that I was noticing there was something wrong. Luca wasn't meeting his milestonesI s i.e. couldn't sit up, couldn't crawl, was making some noises and could stand...

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Our Stories

In my 1st pregnancy with my energetic lovely little boy Leo, I found out at 38 weeks that I had a liver condition affected by the pregnancy hormones called Cholestasis.  This... Read more
I had a very normal, straightforward pregnancy. Other than towards the end, my bump wasn't measuring big enough, so I was sent for 2 growth scans. Both we're fine and baby was also fine... Read more

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