Our Stories

     
Thomas is 8 years old and has brain conditions due to CMV. He is severely disabled as a result but he is the happiest little boy in the world.  In her blog, Thomas' mum Lucy, explains what happened after Thomas was born and how he was diagnosed. https://ridingonastar201295083.wordpress.com/2019/11/20/in-the-beginning-the-path-to-...
April 2014 Having a child is always a life-changing event, but when our second son Toby was born, we had no idea just how much our future would be altered forever. On the 5th April 2014, Toby shot into the world pretty quickly after a totally normal pregnancy. He needed a little help to get his breathing started due to the speed at which he...
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I have no idea, but she wears 6-9 months clothes.Back when we first got her diagnoses of CMV at 4 months old, I was very active on facebook groups but when...

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Our Stories

September 2012 Matilda – Mighty in Battle. The meaning of the name Matilda is "mighty in battle". So, when our second daughter was born on September 23rd, 2012, it wasn't any... Read more
It all started on the day of my 20 week scan which was also the day of my 20th birthday, the worst day of my life. I never had any worries as I had a straightforward 12... Read more

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