Our Stories

     
September 2014 So here's our story - I'm from the UK. I fell pregnant with my first baby back in 2015, I was over the moon everything seemed to be going fine and smoothly until my 20 week scan. I was just looking forward to find out whether I was having a little girl or boy, my instincts were saying girl. However at this appointment we didn'...
Siân was born on 11th March 1980, apparently normally after a normal pregnancy. She was small for birth-weight but this was not felt to be a problem – it runs in the family. The first few months were uneventful but Siân quickly began to miss her early developmental milestones. She seemed to have problems co-ordinating her movements and we were...
July 09 It was my first pregnancy and it was all rather exciting, choosing names, all the tiny little clothes, and we’d been so looking forward to having the 20-week scan, desperate to get a glimpse of our growing baby. Ok, so it didn’t quite live up to my expectations on the day, the grumpy doctor made me cry (it didn’t take much), telling...
Thomas is 8 years old and has brain conditions due to CMV. He is severely disabled as a result but he is the happiest little boy in the world.  In her blog, Thomas' mum Lucy, explains what happened after Thomas was born and how he was diagnosed. https://ridingonastar201295083.wordpress.com/2019/11/20/in-the-beginning-the-path-to-...
April 2014 Having a child is always a life-changing event, but when our second son Toby was born, we had no idea just how much our future would be altered forever. On the 5th April 2014, Toby shot into the world pretty quickly after a totally normal pregnancy. He needed a little help to get his breathing started due to the speed at which he...
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I have no idea, but she wears 6-9 months clothes.Back when we first got her diagnoses of CMV at 4 months old, I was very active on facebook groups but when...

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Our Stories

Charlie
CMV has left four-year-old daughter Charlie facing a future without her hearing. Charlie’s Mum Lindsey had never heard of CMV during either of her pregnancies, yet she contracted the... Read more
June 2006 On the 27th June 2006, when Christian was born I remember the sheer delight on my husbands face, as we had our boy. He would be Eve's little brother who would be 2 the... Read more

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