Our Stories

     
Matilda – Mighty in Battle. The meaning of the name Matilda is "mighty in battle". So, when our second daughter was born on September 23rd, 2012, it wasn't any coincidence that we named our daughter Matilda.  She is our mighty warrior. Matilda had contracted a virus called Congenital Cytomegalovirus (CMV). CMV is a common birth...
Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only thing that Ava was affected with as a result of CMV. Ava was our second born daughter in May 2011. My pregnancy was fairly complicated from the outset with...
Megan_and_Mum
I fell pregnant with my beautiful daughter Megan in 2009. There were a few minor complications with my pregnancy as I am rhesus negative so I was getting used to being in and out of hospital. However, on my 20 week scan they told me that a ‘yellow blob’ had shown up on the scan and that I would need a specialist scan with a consultant. They...
In November 2011 we found out we were expecting our second child. We were so happy and excited to be completing our family. I had a dream, trouble free pregnancy just like I had had with my son. I did not have one day of illness. Everything was fine at our 20 weeks scan and our 4D scan at 28 weeks. I enjoyed my pregnancy and we all looked...
Joshua_newborn_CMV
When our youngest son was born in 2001, apart from a little jaundice he seemed 'normal'. It was only as time passed and developmental milestones were not reached, that concerns began. He cried  a lot. In fact all the time. I have a video clip at 3 months old in which we document with some amazement, the first time he’d been awake and was...
Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and so he was born by emergency caesarean section. In the seconds he arrived into the world, the delivery room was filled with firm shouts of “he’s covered in a rash...

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Our Stories

Ava_P_CMV
I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and... Read more
My wife’s twelve week scan showed two little people waving at us, practically sat side by side!! I blinked thinking my eyes were blurred... and then told the sonographer that there was... Read more

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