Our Stories

     
Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and so he was born by emergency caesarean section. In the seconds he arrived into the world, the delivery room was filled with firm shouts of “he’s covered in a rash...
Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home. The doctor came round he had a purple rash under his skin an enlarged liver and spleen and was shaking has his blood sugars were low. We had to stay for more...
I had a very normal, straightforward pregnancy. Other than towards the end, my bump wasn't measuring big enough, so I was sent for 2 growth scans. Both we're fine and baby was also fine. I was 40+3 days when I went into labour. My husband drove us to the Birthing Centre at around 3pm and I gave birth to Lexi May at 9.03pm. When the...
Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant brother, Oliver 13. We all live in Hailsham, East Sussex. I'm a teacher and Danny is a contracts supervisor for a mechanical heating and ventilation company. Unfortunately...
Our family consists of my husband, Yoav, and our two daughters, Maya and Leila. Our youngest daughter, Leila, was born with congenital cytomegalovirus (cCMV) and has unilateral hearing loss as a result. Our beautiful girl was born without complications on a wonderful February day in 2014. The only niggle was that she failed her newborn hearing...
Anna Rose
On 27th December 2013 at 6.31am, our beautiful baby Anna Rose was born. 7lb 2.5oz of pure scrumminess, we were elated to have a little girl to add to our family. On the surface, she seemed healthy. We were kept in overnight as her blood sugars were a little low and her temperature dipped a little, but other than this nobody had any concerns....

Pages

     

Our Stories

Clemmie was born 3 weeks early while my husband was serving with the British Army in Afghanistan. Up to that point, I’d had a normal pregnancy with no adverse scans or distinctive illness... Read more
Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only... Read more

Latest Events

Registered charity no: 1171773