Our Stories

     
Having a child is always a life-changing event, but when our second son Toby was born, we had no idea just how much our future would be altered forever. On the 5th April 2014, Toby shot into the world pretty quickly after a totally normal pregnancy. He needed a little help to get his breathing started due to the speed at which he arrived, but...
Mia
Hello, this is Mia, she is 6 months and 2 weeks old and I got diagnosed with cmv when I was 6 months plus pregnant. It was a horrible time we only found out as I got really poorly and could not get out of bed. I had to have loads of growth scans and scans on Mia with her brain and spleen. Several doctors said Mia had no signs of cmv in the womb...
Dawn has always wanted to write a book -  her daughter is now 23 and this is what she says 'This is a true and short story about a Mother's special journey bringing up her daughter.  This is a raw insight into my world and how I raised a child with CMV, Autism, Deafness and many other complex needs. It is written in my own words...
When Paul and I found out that we were expecting it was the happiest time of our lives we were so excited, the very next day I got in contact with the doctors and was booked in for my first midwife appointment. A couple of weeks later I went to the midwife for what is called your booking in appointment where she went through many things with me...
Hi everyone, meet chocolate faced Darcie. She is my beautiful 20 month old daughter. I was diagnosed CMV positive when I was 6 months pregnant. It is thought that I caught it when I was 4 months pregnant. I was so unwell & nobody could work out what was wrong with me.  After blood tests, it was confirmed that I contracted CMV whilst I...
Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information and so I googled, and what I found terrified me. We were referred to foetal medicine but, in the interim, which was only 5 days but felt like 5 years,...

Pages

     

Our Stories

Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only... Read more
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I... Read more

Latest Events

Thursday 28 February

Registered charity no: 1171773