Our Stories

     
December 2013 This is our Evalyn Rose, she was a long awaited baby.  My husband and I were told we could not have any more children due to fertility issues, we tried a round of fertility treatment which failed so decided to give up, time went on and we moved county, houses and jobs and it was then I found out I was pregnant! ... shocked...
Evie_CMV_5
July 2014 My name is Alex and this is the story of how I came to learn about CMV. January 13th 2014, I was stood staring at the positive pregnancy test in my hand. After 5 months of trying for our second baby I finally had the good news I had been waiting for. My pregnancy was uneventful in the main, I enjoy being pregnant and luckily don't...
June 2014 I found out I had CMV in pregnancy and thought I would share my experience in the hope that it might help (sorry if this is a bit lengthy!) All had been well at my 12 week scan and I had hardly any sickness compared to my first pregnancy three years ago with my little boy Finley. Then at our 20 wk scan, we found out that our...
Finley-and-Harley-cmv
September 2010 My name is Julie Anne Stansfield and this is my story of when and how CMV changed my life. On the 12th February 2010, I found out I was pregnant, it seemed like a natural progression having been married for 8 months and we always wanted a family. We were surprised it happened so quickly but we were over the moon. We kept it...
2015 We found out in January 2017 just after Gabe’s first birthday that he had Congenital CMV.  I had a great pregnancy and a delivery with no problems. However he was born with tiny purple spots on his face and we were kept in overnight for observation – although no mention that it could be CMV. As the weeks went by Gabe started to...
My name is Angela and I have been a qualified midwife since 2008 at the Birmingham Womens Hospital.  Prior to this I was a nurse working mostly in A & E at the Queen Elizabeth Hospital in Birmingham.  I have loved working as both a nurse and a midwife and have been very privileged to work amongst amazing teams.  We have 4...
Pregnancy was the easy bit! A fairly broad statement but it was! I loved being pregnant, I felt the best I had in ages and my husband would no doubt agree after years of hormonal fertility medication!! It was getting pregnant that was the challenge, we had been trying for many years and after being refused NHS treatment due to their strict...
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks before having my son that I got a sore throat but it was only during the nights though!! Strange!! I went to docs about it but was told it was just a virus so I...
In my 1st pregnancy with my energetic lovely little boy Leo, I found out at 38 weeks that I had a liver condition affected by the pregnancy hormones called Cholestasis.  This can cause stillbirth so they induced me at that time.   Leo was healthy and born at over 8 pounds and has been happy and healthy ever since! I was told I...
January 2015 Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant brother, Oliver 13. We all live in Hailsham, East Sussex. I'm a teacher and Danny is a contracts supervisor for a mechanical heating and ventilation company....
My daughter was born with congenital CMV. I live in the U.S. and I had never heard of CMV before my pregnancy, nor had any of my friends or family who had normal pregnancies. Throughout my entire pregnancy, doctors and nurses could see there was something wrong in my ultrasounds but could not tell me what it was until around my 35th week of...
Joshua_newborn_CMV
2001 When our youngest son was born in 2001, apart from a little jaundice he seemed 'normal'. It was only as time passed and developmental milestones were not reached, that concerns began. He cried  a lot. In fact all the time. I have a video clip at 3 months old in which we document with some amazement, the first time he’d been awake...

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Our Stories

April 2014 Hi everyone, meet chocolate faced Darcie. She is my beautiful 20 month old daughter. I was diagnosed CMV positive when I was 6 months pregnant. It is thought that I caught it... Read more
Thomas is 8 years old and has brain conditions due to CMV. He is severely disabled as a result but he is the happiest little boy in the world.  In her blog, Thomas' mum Lucy,... Read more

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