Our Stories

     
My name is Amanda and I’m 36 years old.   After 3 years of trying for a baby through 2 rounds of IVF, I conceived twins.  At 5 weeks I broke out in a rash all over my arms and legs. Doctors kept telling me it's allergy. I spent days at the A&E and finally my GP ordered a blood test to check. Following weeks of investigations, I...
Mia
Hello, this is Mia, she is 6 months and 2 weeks old and I got diagnosed with cmv when I was 6 months plus pregnant. It was a horrible time we only found out as I got really poorly and could not get out of bed. I had to have loads of growth scans and scans on Mia with her brain and spleen. Several doctors said Mia had no signs of cmv in the womb...
Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she was taken up to special care to be checked over, then was brought back to me as she was fine. The following day she had her newborn hearing screening, which she failed in...
My wife’s twelve week scan showed two little people waving at us, practically sat side by side!! I blinked thinking my eyes were blurred... and then told the sonographer that there was something wrong with the screen.  We were then congratulated for being expectant parents of identical twins.  My initial thoughts, I need more car...
Hi, I am Alicia Parks, I am very happy. Despite all my problems, I am very socially aware, alert young lady, and very mischievous. My mum and dad are Mandy & Neil. (I cannot write but I think this is what I would want to say) My mum and dad waited 14 years for me and say I am a “precious gift” that has given them a road no parent would ever...
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid privately at the Portland Hospital in London to have a hearing test. We were given hearing tests and the Portland Hospital ran blood tests. They also went back...

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Our Stories

  In 2015 we lost our daughter Leia to cmv. This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).   Most people have... Read more
Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant brother, Oliver... Read more

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