Our Stories

     
Matilda – Mighty in Battle. The meaning of the name Matilda is "mighty in battle". So, when our second daughter was born on September 23rd, 2012, it wasn't any coincidence that we named our daughter Matilda.  She is our mighty warrior. Matilda had contracted a virus called Congenital Cytomegalovirus (CMV). CMV is a common birth...
This is our Evalyn Rose, she was a long awaited baby.  My husband and I were told we could not have any more children due to fertility issues, we tried a round of fertility treatment which failed so decided to give up, time went on and we moved county, houses and jobs and it was then I found out I was pregnant! ... shocked! The pregnancy...
Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information and so I googled, and what I found terrified me. We were referred to foetal medicine but, in the interim, which was only 5 days but felt like 5 years,...
Our Story – Orla and Cytomegalovirus. On the 2nd July 2018 my wife Hannah went in to labour, it was unremarkable (at least as much as such a thing is) and Orla was born shortly after we arrived in hospital. We now had a most beautiful daughter and Arlo and Ethan had a little sister. Of course the following story does not change that and Orla is...
Luca was born on the 7th of January, 2007, just one day early, weighing 5lbs 6oz. Normal delivery and everything seemed ok. It wasn't until Luca was just over 6 months old (July 07) that I was noticing there was something wrong. Luca wasn't meeting his milestonesI s i.e. couldn't sit up, couldn't crawl, was making some noises and could stand...
Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It was an easy pregnancy and Lucy was booked in to the local birthing centre. The delivery went well but as soon as Lyra was born it was evident she was a very sick...

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Our Stories

Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It... Read more
Clemmie was born 3 weeks early while my husband was serving with the British Army in Afghanistan. Up to that point, I’d had a normal pregnancy with no adverse scans or distinctive illness... Read more

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