Our Stories

     
Charlie
I found out in October 2010 i was pregnant with my second child :)   It was a planned pregnancy and we were over the moon when we got our positive test. At the time I was a cleaner at my daughter's nursery. My morning sickness was all pretty standard and had gone by the time I went for my 12 week scan. The morning of the scan we travelled...
Charlie
CMV has left four-year-old daughter Charlie facing a future without her hearing. Charlie’s Mum Lindsey had never heard of CMV during either of her pregnancies, yet she contracted the common virus which has caused her little girl to battle severe deafness.  Although never actually being diagnosed at birth, Charlie was a small birth weight...
Chloe
January 1999 On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately taken to the SCBU. She was a poor feeder, could not control her body temperature, had a large liver and black spots and jaundice. All were put down to...
June 2006 On the 27th June 2006, when Christian was born I remember the sheer delight on my husbands face, as we had our boy. He would be Eve's little brother who would be 2 the following day. Within 24 hours it became apparent that our new arrival was poorly.  He had developed jaundice and was moved to special care.  He was given...
November 2016 Katie, Clara's mum, says .... 30 weeks into my pregnancy with Clara, my second child, I was informed in a phone call that I had contracted CMV in pregnancy. I had been feeling feverish and fluey for a few weeks by this time, and went to hospital when Clara’s movements changed, which led to a blood test which...
March 2011 Clemmie was born 3 weeks early while my husband was serving with the British Army in Afghanistan. Up to that point, I’d had a normal pregnancy with no adverse scans or distinctive illness. Clemmie was delivered by c-section due to a transverse lie and was not initially in any distress. At birth her heart & lungs failed; she...
When Paul and I found out that we were expecting it was the happiest time of our lives we were so excited, the very next day I got in contact with the doctors and was booked in for my first midwife appointment. A couple of weeks later I went to the midwife for what is called your booking in appointment where she went through many things with me...
April 2014 Hi everyone, meet chocolate faced Darcie. She is my beautiful 20 month old daughter. I was diagnosed CMV positive when I was 6 months pregnant. It is thought that I caught it when I was 4 months pregnant. I was so unwell & nobody could work out what was wrong with me.  After blood tests, it was confirmed that I contracted...
Dawn has always wanted to write a book -  her daughter is now 23 and this is what she says 'This is a true and short story about a Mother's special journey bringing up her daughter.  This is a raw insight into my world and how I raised a child with CMV, Autism, Deafness and many other complex needs. It is written in my own words...
Elliot_CMV
February 2011 This is my story of the effects of CMV and little boy Elliot.  I was 16 and pregnant, everything seemed to be going well, apart from being young and scared... 29 + weeks I went to see the midwife, and she booked me in for a growth scan as my bump was small. She told me it wouldn't really be anything to worry about...
Hi my name is Suzanne, I'm a mum to an only child.. Ethan Isaiah. Ethan was born in May 2011, 4 weeks before his due date. I'd had a perfect pregnancy up until a scan at 34 weeks which showed Ethan to be measuring small. I didn't realise how small although I knew my bump was tiny compared to others and didn't think much of it as I'm not very big...
Hi my name is Suzanne, I'm a mum to an only child. Ethan Isaiah. Ethan was born in May 2011, 4 weeks before his due date. I'd had a perfect pregnancy up until a scan at 34 weeks which showed Ethan to be measuring small. I didn't realise how small although I knew my bump was tiny compared to others and didn't think much of it as I'm not very big...

Pages

     

Our Stories

We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid... Read more
December 2011 When I was pregnant my baby was measuring small and I had to go for weekly dopplers and fortnightly growth scans. A month before my due date, I was told there was no... Read more

Latest Events

Registered charity no: 1171773