Our Stories

     
January 2009 My wife’s twelve week scan showed two little people waving at us, practically sat side by side!! I blinked thinking my eyes were blurred... and then told the sonographer that there was something wrong with the screen.  We were then congratulated for being expectant parents of identical twins.  My initial thoughts, I...
March 1999 Hi, I am Alicia Parks, I am very happy. Despite all my problems, I am very socially aware, alert young lady, and very mischievous. My mum and dad are Mandy & Neil. (I cannot write but I think this is what I would want to say) My mum and dad waited 14 years for me and say I am a “precious gift” that has given them a road no...
May 1992 When Ben was born he was surrounded by doctors, so alarm bells immediately started ringing. The doctors didn’t really know what they were dealing with. They didn’t test for CMV and information on CMV at the hospital was at least 20 years old. The only reason he was eventually tested for CMV was down to an Australian doctor on...
Chloe
January 1999 On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately taken to the SCBU. She was a poor feeder, could not control her body temperature, had a large liver and black spots and jaundice. All were put down to...
June 2006 On the 27th June 2006, when Christian was born I remember the sheer delight on my husbands face, as we had our boy. He would be Eve's little brother who would be 2 the following day. Within 24 hours it became apparent that our new arrival was poorly.  He had developed jaundice and was moved to special care.  He was given...
Dawn has always wanted to write a book -  her daughter is now 23 and this is what she says 'This is a true and short story about a Mother's special journey bringing up her daughter.  This is a raw insight into my world and how I raised a child with CMV, Autism, Deafness and many other complex needs. It is written in my own words...
Joshua_newborn_CMV
2001 When our youngest son was born in 2001, apart from a little jaundice he seemed 'normal'. It was only as time passed and developmental milestones were not reached, that concerns began. He cried  a lot. In fact all the time. I have a video clip at 3 months old in which we document with some amazement, the first time he’d been awake...
April 1982 I guess I had a pretty typical childhood with some exceptions.  Here is what my mother has to say: “Kristen was born 10:58am on April 5th, 1982 weighing 6lbs 1oz after a full term, non-eventful second pregnancy.  I was 33 at the time.  When she was first brought to me I noticed her skin was covered with little red...
December 1997 Lewis was born 3 weeks early on 23rd December 1997 following a normal healthy pregnancy. The labour was not easy, but relatively quick being 4 hours in total but he was in distress and was very nearly a c section delivery. I went into early labour due to an infection.  He was born with the petechial rash which we were...
January 2007 Luca was born on the 7th of January, 2007, just one day early, weighing 5lbs 6oz. Normal delivery and everything seemed ok. It wasn't until Luca was just over 6 months old (July 07) that I was noticing there was something wrong. Luca wasn't meeting his milestonesI s i.e. couldn't sit up, couldn't crawl, was making some noises...
September 1993 Everything had been going fine with my pregnancy until the 18-week scan. Then I was told I had my dates wrong and they put me back by 5 weeks, originally it was August 15th, now it was September 29th. I was a bit upset about this, as we had been trying for a baby and I was positive about my dates. Still, at least it gave us a...
January 2009 Noah was born on 30th January 2009 after a fairly unremarkable pregnancy and a fairly normal delivery (even with the cord round his neck!) He failed his newborn hearing screening test but we and the examiner put it down to congestion and arranged a retest. Following two retests and still no response in his left ear, they...

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Our Stories

January 2015 Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant... Read more
Megan_and_Mum
February 2010 I fell pregnant with my beautiful daughter Megan in 2009. There were a few minor complications with my pregnancy as I am rhesus negative so I was getting used to being... Read more

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