Our Stories

     
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks before having my son that I got a sore throat but it was only during the nights though!! Strange!! I went to docs about it but was told it was just a virus so I...
April 2011 Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she was taken up to special care to be checked over, then was brought back to me as she was fine. The following day she had her newborn hearing screening, which...
Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It was an easy pregnancy and Lucy was booked in to the local birthing centre. The delivery went well but as soon as Lyra was born it was evident she was a very sick...
September 2012 Matilda – Mighty in Battle. The meaning of the name Matilda is "mighty in battle". So, when our second daughter was born on September 23rd, 2012, it wasn't any coincidence that we named our daughter Matilda.  She is our mighty warrior. Matilda had contracted a virus called Congenital Cytomegalovirus (CMV). CMV is a...
Megan_and_Mum
February 2010 I fell pregnant with my beautiful daughter Megan in 2009. There were a few minor complications with my pregnancy as I am rhesus negative so I was getting used to being in and out of hospital. However, on my 20 week scan they told me that a ‘yellow blob’ had shown up on the scan and that I would need a specialist scan with a...
2012 Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and so he was born by emergency caesarean section. In the seconds he arrived into the world, the delivery room was filled with firm shouts of “he’s covered...
December 2011 When I was pregnant my baby was measuring small and I had to go for weekly dopplers and fortnightly growth scans. A month before my due date, I was told there was no change in my baby's growth scans and that I was going to be induced. Rubie May was not growing and was distressed in the womb. Rubie May was born 4 weeks premature...
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid privately at the Portland Hospital in London to have a hearing test. We were given hearing tests and the Portland Hospital ran blood tests. They also went back...
July 2012 In November 2011 we found out we were expecting our second child. We were so happy and excited to be completing our family. I had a dream, trouble free pregnancy just like I had had with my son. I did not have one day of illness. Everything was fine at our 20 weeks scan and our 4D scan at 28 weeks. I enjoyed my pregnancy and we all...
Thomas is 8 years old and has brain conditions due to CMV. He is severely disabled as a result but he is the happiest little boy in the world.  In her blog, Thomas' mum Lucy, explains what happened after Thomas was born and how he was diagnosed. https://ridingonastar201295083.wordpress.com/2019/11/20/in-the-beginning-the-path-to-...
April 2014 Having a child is always a life-changing event, but when our second son Toby was born, we had no idea just how much our future would be altered forever. On the 5th April 2014, Toby shot into the world pretty quickly after a totally normal pregnancy. He needed a little help to get his breathing started due to the speed at which he...

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Our Stories

Ava_P_CMV
Sept 2011 I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her... Read more
July 09 It was my first pregnancy and it was all rather exciting, choosing names, all the tiny little clothes, and we’d been so looking forward to having the 20-week scan, desperate to... Read more

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