Our Stories

     
Evie_CMV_5
July 2014 My name is Alex and this is the story of how I came to learn about CMV. January 13th 2014, I was stood staring at the positive pregnancy test in my hand. After 5 months of trying for our second baby I finally had the good news I had been waiting for. My pregnancy was uneventful in the main, I enjoy being pregnant and luckily don't...
June 2014 I found out I had CMV in pregnancy and thought I would share my experience in the hope that it might help (sorry if this is a bit lengthy!) All had been well at my 12 week scan and I had hardly any sickness compared to my first pregnancy three years ago with my little boy Finley. Then at our 20 wk scan, we found out that our...
Pregnancy was the easy bit! A fairly broad statement but it was! I loved being pregnant, I felt the best I had in ages and my husband would no doubt agree after years of hormonal fertility medication!! It was getting pregnant that was the challenge, we had been trying for many years and after being refused NHS treatment due to their strict...
Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks before having my son that I got a sore throat but it was only during the nights though!! Strange!! I went to docs about it but was told it was just a virus so I...
February 2014 Our family consists of my husband, Yoav, and our two daughters, Maya and Leila. Our youngest daughter, Leila, was born with congenital cytomegalovirus (cCMV) and has unilateral hearing loss as a result. Our beautiful girl was born without complications on a wonderful February day in 2014. The only niggle was that she failed her...
April 2011 Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she was taken up to special care to be checked over, then was brought back to me as she was fine. The following day she had her newborn hearing screening, which...
Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It was an easy pregnancy and Lucy was booked in to the local birthing centre. The delivery went well but as soon as Lyra was born it was evident she was a very sick...
September 2012 Matilda – Mighty in Battle. The meaning of the name Matilda is "mighty in battle". So, when our second daughter was born on September 23rd, 2012, it wasn't any coincidence that we named our daughter Matilda.  She is our mighty warrior. Matilda had contracted a virus called Congenital Cytomegalovirus (CMV). CMV is a...
2012 Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s heart and so he was born by emergency caesarean section. In the seconds he arrived into the world, the delivery room was filled with firm shouts of “he’s covered...
July 2013 My son was born at 12.18am on the 28th July 2013 after what I thought had been a normal pregnancy. I got to Ipswich Hospital where I was preparing to give birth at around 11pm. During examination the midwife felt limbs so they scanned me to find it was his feet, the midwife pressed the alarm button. As quickly as possible they took me...
December 2011 When I was pregnant my baby was measuring small and I had to go for weekly dopplers and fortnightly growth scans. A month before my due date, I was told there was no change in my baby's growth scans and that I was going to be induced. Rubie May was not growing and was distressed in the womb. Rubie May was born 4 weeks premature...
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid privately at the Portland Hospital in London to have a hearing test. We were given hearing tests and the Portland Hospital ran blood tests. They also went back...

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Our Stories

June 2006 On the 27th June 2006, when Christian was born I remember the sheer delight on my husbands face, as we had our boy. He would be Eve's little brother who would be 2 the... Read more
November 2016 Katie, Clara's mum, says .... 30 weeks into my pregnancy with Clara, my second child, I was informed in a phone call that I had contracted CMV in pregnancy. I... Read more

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