Our Stories

     
Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home. The doctor came round he had a purple rash under his skin an enlarged liver and spleen and was shaking has his blood sugars were low. We had to stay for more...
Anna Rose
December 2013   On 27th December 2013 at 6.31am, our beautiful baby Anna Rose was born. 7lb 2.5oz of pure scrumminess, we were elated to have a little girl to add to our family. On the surface, she seemed healthy. We were kept in overnight as her blood sugars were a little low and her temperature dipped a little, but other than this nobody...
It all started on the day of my 20 week scan which was also the day of my 20th birthday, the worst day of my life. I never had any worries as I had a straightforward 12 week scan, and had also recently felt him starting to move around. That had changed at my 20 week scan. There was very low amniotic fluid, the...
  May 2011   Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only thing that Ava was affected with as a result of CMV. Ava was our second born daughter in May 2011. My pregnancy was fairly...
Ava_P_CMV
Sept 2011 I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and she would have learning difficulties, and we were referred to UCH hospital in London.    That crushed me - her brain. There's nothing...
Braden-10days-old
June 2012 I was 14 weeks pregnant when my husband showed me a full torso rash that he had. I was already aware that my immunity to Rubella had dropped so sent him off to the Doctors straight away. We were told to quarantine ourselves for a few days and then a week later we got the results back that my husband had contracted CMV. The...
Charlie
CMV has left four-year-old daughter Charlie facing a future without her hearing. Charlie’s Mum Lindsey had never heard of CMV during either of her pregnancies, yet she contracted the common virus which has caused her little girl to battle severe deafness.  Although never actually being diagnosed at birth, Charlie was a small birth weight...
March 2011 Clemmie was born 3 weeks early while my husband was serving with the British Army in Afghanistan. Up to that point, I’d had a normal pregnancy with no adverse scans or distinctive illness. Clemmie was delivered by c-section due to a transverse lie and was not initially in any distress. At birth her heart & lungs failed; she...
April 2014 Hi everyone, meet chocolate faced Darcie. She is my beautiful 20 month old daughter. I was diagnosed CMV positive when I was 6 months pregnant. It is thought that I caught it when I was 4 months pregnant. I was so unwell & nobody could work out what was wrong with me.  After blood tests, it was confirmed that I contracted...
Elliot_CMV
February 2011 This is my story of the effects of CMV and little boy Elliot.  I was 16 and pregnant, everything seemed to be going well, apart from being young and scared... 29 + weeks I went to see the midwife, and she booked me in for a growth scan as my bump was small. She told me it wouldn't really be anything to worry about...
December 2013 This is our Evalyn Rose, she was a long awaited baby.  My husband and I were told we could not have any more children due to fertility issues, we tried a round of fertility treatment which failed so decided to give up, time went on and we moved county, houses and jobs and it was then I found out I was pregnant! ... shocked...
Evie_CMV_5
July 2014 My name is Alex and this is the story of how I came to learn about CMV. January 13th 2014, I was stood staring at the positive pregnancy test in my hand. After 5 months of trying for our second baby I finally had the good news I had been waiting for. My pregnancy was uneventful in the main, I enjoy being pregnant and luckily don't...

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Our Stories

September 2015   Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically... Read more
February 2014 Our family consists of my husband, Yoav, and our two daughters, Maya and Leila. Our youngest daughter, Leila, was born with congenital cytomegalovirus (cCMV) and has... Read more

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