Our Stories

     
November 2016 Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any more information and so I googled, and what I found terrified me. We were referred to foetal medicine but, in the interim, which was only 5 days but...
2015 We found out in January 2017 just after Gabe’s first birthday that he had Congenital CMV.  I had a great pregnancy and a delivery with no problems. However he was born with tiny purple spots on his face and we were kept in overnight for observation – although no mention that it could be CMV. As the weeks went by Gabe started to...
My name is Angela and I have been a qualified midwife since 2008 at the Birmingham Womens Hospital.  Prior to this I was a nurse working mostly in A & E at the Queen Elizabeth Hospital in Birmingham.  I have loved working as both a nurse and a midwife and have been very privileged to work amongst amazing teams.  We have 4...
In my 1st pregnancy with my energetic lovely little boy Leo, I found out at 38 weeks that I had a liver condition affected by the pregnancy hormones called Cholestasis.  This can cause stillbirth so they induced me at that time.   Leo was healthy and born at over 8 pounds and has been happy and healthy ever since! I was told I...
January 2015 Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant brother, Oliver 13. We all live in Hailsham, East Sussex. I'm a teacher and Danny is a contracts supervisor for a mechanical heating and ventilation company....
My daughter was born with congenital CMV. I live in the U.S. and I had never heard of CMV before my pregnancy, nor had any of my friends or family who had normal pregnancies. Throughout my entire pregnancy, doctors and nurses could see there was something wrong in my ultrasounds but could not tell me what it was until around my 35th week of...
I had a very normal, straightforward pregnancy. Other than towards the end, my bump wasn't measuring big enough, so I was sent for 2 growth scans. Both we're fine and baby was also fine. I was 40+3 days when I went into labour. My husband drove us to the Birthing Centre at around 3pm and I gave birth to Lexi May at 9.03pm. When the...
Mia
Hello, this is Mia, she is 6 months and 2 weeks old and I got diagnosed with cmv when I was 6 months plus pregnant. It was a horrible time we only found out as I got really poorly and could not get out of bed. I had to have loads of growth scans and scans on Mia with her brain and spleen. Several doctors said Mia had no signs of cmv in the womb...
September 2015   Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically from previous growth scans. Initially, the prognosis was poor and we were advised of the many life-limiting conditions he could be born with and, ...
July 2018 Our Story – Orla and Cytomegalovirus. On the 2nd July 2018 my wife Hannah went in to labour, it was unremarkable (at least as much as such a thing is) and Orla was born shortly after we arrived in hospital. We now had a most beautiful daughter and Arlo and Ethan had a little sister. Of course the following story does not change...
Renae_Donald_1
September 2014 My pregnancy was fine up until 20 weeks when I went for my ultrasound.  They noticed there was no fluid around my baby and I had actually lost my waters at 18 weeks pregnant. Not knowing what the problem was, they began all the tests which all came back fine.  Days went on been monitored every day, consultants...
Seb
Seb was born December 2019 with congenital CMV. Having contracted CMV at 8 weeks pregnant and being told that transmission across the placenta in the first trimester has much more significant outcomes for baby, the next 32 weeks of pregnancy became a very long and worrying time. I feel very lucky to have given birth to a healthy, asymptomatic baby...

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Our Stories

January 2009 Noah was born on 30th January 2009 after a fairly unremarkable pregnancy and a fairly normal delivery (even with the cord round his neck!) He failed his newborn hearing... Read more
January 2015 Our names are Dawn Bean, 43 and Daniel Hunt, 37. We are lucky to be the proud parents of Joseph (Joey) Hunt, 2 (02.01.2015) who has a super sister, Daisy, 14 and a brilliant... Read more

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