Our Stories

     
July 09 It was my first pregnancy and it was all rather exciting, choosing names, all the tiny little clothes, and we’d been so looking forward to having the 20-week scan, desperate to get a glimpse of our growing baby. Ok, so it didn’t quite live up to my expectations on the day, the grumpy doctor made me cry (it didn’t take much), telling...
Thomas is 8 years old and has brain conditions due to CMV. He is severely disabled as a result but he is the happiest little boy in the world.  In her blog, Thomas' mum Lucy, explains what happened after Thomas was born and how he was diagnosed. https://ridingonastar201295083.wordpress.com/2019/11/20/in-the-beginning-the-path-to-...
April 2014 Having a child is always a life-changing event, but when our second son Toby was born, we had no idea just how much our future would be altered forever. On the 5th April 2014, Toby shot into the world pretty quickly after a totally normal pregnancy. He needed a little help to get his breathing started due to the speed at which he...
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I have no idea, but she wears 6-9 months clothes.Back when we first got her diagnoses of CMV at 4 months old, I was very active on facebook groups but when...

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Our Stories

September 2015   Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically... Read more
From day 1 to 15 months old. My girl Violet.   Born on the leap year 29th February, full term at 39 weeks, weighing 5lbs7oz. Severely to profoundly deaf. Now weighing... well, I... Read more

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