Leia

     

 

In 2015 we lost our daughter Leia to cmv.

This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).
 
Most people have flu like symptoms, I had none. I will always have CMV, as long as I'm healthy it will stay dormant. My OB said you can be tested but you have to ask. My reply was "If you never heard of it how does one ask!!!" We know what CMV has done to our family. I want to help spread awareness before it happens to anyone else.  
     

Our Stories

Pregnancy was the easy bit! A fairly broad statement but it was! I loved being pregnant, I felt the best I had in ages and my husband would no doubt agree after years of hormonal fertility... Read more
We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid... Read more

Latest Events

Registered charity no: 1171773