Leia

     

 

In 2015 we lost our daughter Leia to cmv.

This is Leia. At 22 weeks I was diagnosed with CMV and Leia had Congenital CMV (passed through the placenta).
 
Most people have flu like symptoms, I had none. I will always have CMV, as long as I'm healthy it will stay dormant. My OB said you can be tested but you have to ask. My reply was "If you never heard of it how does one ask!!!" We know what CMV has done to our family. I want to help spread awareness before it happens to anyone else.  
     

Our Stories

Siân was born on 11th March 1980, apparently normally after a normal pregnancy. She was small for birth-weight but this was not felt to be a problem – it runs in the family. The first few... Read more
January 2009 Noah was born on 30th January 2009 after a fairly unremarkable pregnancy and a fairly normal delivery (even with the cord round his neck!) He failed his newborn hearing... Read more

Latest Events

Registered charity no: 1171773