URGENT - Public comments required by UK National Screening Committee

     

Please Consider Responding to the UK National Screening Committee Review on CMV Screening - CLOSING DATE JANUARY 17th

The UK National Screening Committee (UK NSC) are currently reviewing their 2017 decision NOT to screen for CMV.  They are currently accepting public comments on this review until January 17th when it will no longer be possible to make your views known. You can find further information at:

 Cytomegalovirus - UK National Screening Committee (UK NSC) - GOV.UK (view-health-screening-recommendations.service.gov.uk)

Members of the public, including patients and family members who have experienced the condition, are welcome to submit comments. The UK NSC will review these, along with the scientific evidence and comments from professional organisations, charities and researchers.Your comments and personal stories are so important so please submit them before January 17th if you can.

At CMV Action we are also currently working on a response with our CMV medical colleagues:

 Screening in Pregnancy

We will be submitting evidence that there is now a first trimester intervention (the trimester when the most serious damage can be done to the baby) following a randomised control trial which demonstrated a 71% reduction in the risk of foetal transmission when a high dose of Valaciclovir was given to women who seroconvert in pregnancy.  We believe that this should be available to all seronegative pregnant women.

Screening for Neonates

Our response will include evidence from the recent Valgan Toddler Study when a randomised control trial showed no efficacy of late treatment where there is hearing loss caused by CMV, so the only opportunity to preserve hearing is by treatment in the new-born period (within the first four weeks of a baby’s life).  Screening would identify the babies that are not picked up in this short window of opportunity.

 

FURTHER RESPONSES TO THIS REVIEW BY OUR MEMBERS AND SUPPORTERS WILL ADD PRESSURE AND A VOICE TO OUR CASE.  PERSONAL EXPERIENCE IS ALWAYS SO POWERFUL, SO PLEASE DO CONSIDER SUBMITTING YOUR COMMENTS AND EXPERIENCES.

     

Our Stories

2015 We found out in January 2017 just after Gabe’s first birthday that he had Congenital CMV.  I had a great pregnancy and a delivery with no problems. However he was born with... Read more
Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It... Read more

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