Dec 2017

     

CMV ACTION DECEMBER NEWSLETTER TO MEMBERS

Dear Members,

2017 has been a very busy year for us.  We supported over 500 families through website, email, social media and phone calls and sent out over 60 awareness packs.

We connected with many, many students, midwives and other medical professionals around the UK by attending and presenting at a programme of conferences, awareness days and training sessions throughout the year.  We had information stalls at conferences for maternity and other medical professionals in London, Bristol, Canterbury, Birmingham, Manchester and Edinburgh and met so many people wanting to talk about CMV and to take away our literature and information to inform their practice.

We were also delighted to be invited to speak at several events for Teachers of the Deaf, Speech and Language Therapists and Audiologists during the year. 

Our CMV i-learn module on the RCM website continues to be one of the most popular with over 150 completing the course in 2017.

In June, during CMV Awareness month, we held a very successful Family Day at Thames Valley Adventure Park in June for families with a child affected by CMV, which was enjoyed by all who attended and we also held Teddy Bear’s Picnics, hosted by our lovely supporters (including one in California!).

Further details and statistics in relation to our achievements in 2017 can be found at:  

http://cmvaction.org.uk/about-us/our-achievements/our-achievements-2017 

One of our major pieces of work in 2017 has been working with the University of York on a project to estimate the costs of congenital CMV in the UK.  This project, which will deliver next year, will result in a comprehensive report, the first of its kind, giving us information and estimates of the direct health and productivity costs of CMV.   We thank all those members who have already assisted in research for this project by taking part in the recent Parents Questionnaire.  More information on the launch of the report, its findings and the opportunities we hope will result from the report, will be available in 2018.

However, all of our activities do carry a price tag.  There are lots of other things we would like to do to raise awareness of CMV and improve care but we receive no funding from Government or other agencies but rely solely on all the wonderful people who fundraise for us – for example, those that run marathons and take part in challenges, who hold fun days, golf days and hair cut challenges!  If you are able to fundraise for us in any way, or make a donation towards the continuation of our work we would be so grateful.  Further details of how you can support us (and how we can support your wonderful efforts) can be found at:  http://cmvaction.org.uk/get-involved.  Thank you so much.

Now that all remains to us is to wish you all a very happy Christmas and a peaceful New Year.

All at CMV Action

     

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