6:07am 20th July 2015
(Updated 10:09am 20th July 2015)
A midwife and her husband from Wendover are hoping the death of their baby will stop other couples going through the same pain.
Listen to the live report here - http://www.mix96.co.uk/news/local/1676237/couple-who-lost-their-baby-to-unknown-common-infection-speak-out/
Sharon and Tim Robinson found out at 25 weeks that their son was too small and were evetually told he had an infection called CMV.
He had no brain function and died at birth.
"It's pretty devastating to have your first son or daughter, who you're thinking about playing with in the future, and at the last minute he's just snatched away from you."
"It was hideous to be honest. Being a midwife as well, I was almost in a good place because I had the contacts.
"But I was also a patient and I was going through, what I thought, was a normal pregnancy. There was no problems until that point.
"It was probably the worst six weeks of our lives, waiting for the results."
But very few people know about the condition, something Sharon wants to change:
"I've been a midwife 11 years and all that time I've never, ever known it.
"Obviously we're quite involved in it now, if you like, but all my colleagues, family, friends still haven't heard of it either and actually this is the most common infection that parents can pass to their babies."
They say around 750 children are born with Downs Syndrome each year, something many people get tested for, but 1,000 are born with CMV. Often parents don't even realise and neither to medical staff.
It can then show up later when kids end up with hearing problems.
It can be spread through children's saliva and urine, but it can just be genetic if parents are a carrier.
Doctors will test for the condition if the baby shows up being quite small at around 25-28 weeks, through scans and, sometimes, an invasive procedure.
So Sharon and Tim are working with CMV Action to raise awareness and find money for a vaccine.