CMV Action AGM 2012

We recently held our first Annual General Meeting in Derbyshire, which was a great opportunity to discuss the outcomes of 2011, as well as the many things we have in the pipeline for 2012! Firstly, we are delighted to welcome two new trustees, Sarah Beadell and Liz Estall, to the board. Sarah will take on the role of Head of Fundraising, and Liz will take up the position of Membership Secretary. Both ladies have a wealth of experience working for charities and we are very excited to have them on board. Caroline Star, our former Membership Secretary, will now take up the role of Head of Awareness Raising. She has been keeping a close eye on a number of clinical trials and medical research projects relating to CMV. Caroline is planning awareness campaigns to target health professionals and the media, when the results are published later in the year. Hopefully having some more scientific evidence to back up our campaigns will provide us with a great opportunity to launch them to the press and health professionals. The application to become a fully registered charity is well under way. Having a registered charity number will allow us to make the most of all fundraising opportunities, and ensure that we are fully compliant with the guidelines set by the Charity Commission. We reviewed the accounts from last year and we raised a fantastic £7559! CMV action is run 100% by volunteers, so every penny of this will go towards raising awareness of CMV (advertising costs, leaflets, website, etc.), and providing advice and support to families affected by CMV. It also allows us to become a registered charity, as we have exceeded the £5000 fundraising target set by the Charity Commission. A huge thanks to everybody who took part in fundraising last year! Gaye Tomlinson, our Chair, presented the trustees annual report, giving an overview what we achieved last year, and with this an opportunity to reflect on what we did well and things we could improve on next year. Although it may not seem like we’ve done much in terms of campaigning last year, a lot has been going on behind the scenes to re-structure the organisation and ensure that we have everything in place for an awareness campaign this year. In 2012 we hope to target doctors, nurses, midwives, audiologists, etc. so that they can be fully aware of CMV and therefore be better placed to prevent it, diagnose it and treat it. Another key focus for 2012 is to grow our membership numbers. We hope to reach as many CMV families across the UK as possible, so that we can offer support, put them in touch with other families and keep them up to date with the latest news. If you know of any CMV affected families who are not members yet, please let them know about us. New members can join via our website We would also love for more people to get involved as volunteers, so if you can spare even a small amount of time, we are always in need of people to help with fundraising, supporting parents, admin, raising awareness, or simply giving your feedback on some of the things we are doing. Perhaps you have some professional contacts that could help us to let more people know about CMV? If you would like to get involved in any way, please email and let us know what type of volunteering you are interested in. We will keep you updated throughout 2012, when new research findings are published and campaigns get under way, so watch this space! &; Aloysia Jardine, CMV Action Secretary


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