Can you help? - The Hidden Cost of CMV - Parent Survey

     

YHEC, at The University of York, have been commissioned by CMV Action to try to estimate how much congenital CMV and the long-term impairments it can cause cost the UK each year.

This will help to raise awareness of just how serious the economic impact of congenital CMV is. We hope the report will be used to encourage more research into prevention and follow-up studies and to promote policy changes. 

We want to find out more about the financial impact of supporting a child who is born with CMV and develops complications. We know that the impact of CMV varies from child to child, and the support they require will vary too. We also know that costs don't just mean the cost of treatment itself.
 
We want to find out, from your perspective, not only about the medical support your child receives, but also about other costs to your family, and any changes in your working life.
 
Pls follow the link.
 
     

Our Stories

Thomas is 8 years old and has brain conditions due to CMV. He is severely disabled as a result but he is the happiest little boy in the world.  In her blog, Thomas' mum Lucy,... Read more
July 2013 My son was born at 12.18am on the 28th July 2013 after what I thought had been a normal pregnancy. I got to Ipswich Hospital where I was preparing to give birth at around 11pm... Read more

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