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13th April 2020 Update from our medical advisers

Please strictly follow the government recommendations at present for your own health and health of your children.
Some children/patients may have had additional advice about shielding and should be even more careful about...

Congenital CMV infection, knowledge and attitudes among maternal health professionals and pregnant women.

/sites/default/files/midwifery_digest_2017_wood_0.pdf

This paper is based upon research...

CMV Action is partnering with Swansea and Cardiff Universities, University College London and Imperial College London under the NIHR London In Vitro Diagnostics Co-operative in a project to develop a rapid, low cost, human CMV diagnostic biosensor device which can rapidly detect CMV in saliva or urine with no sample processing. 

CMV...

Congenital viral infections in England over five decades: a population-based observational study

Research carried out by Seilesh Kadambari, Andrew J Pollard, Michael J Goldacre, Raphael Goldacre.

Seilesh...

Would you like to improve your knowledge of CMV?

CMV is a virus which can affect the unborn baby if it is caught during pregnancy. This free, short webinar with one of CMV Actions’ Trustees will give you an overview of the virus, how it can affect the unborn baby and what you can do to minimise the virus’ transmission. Suitable for...

A great article by CMV Action in the Summer 2019 issue of their magazine  ...  all those working in childcare need to know about CMV

/sites/default/files/cmv_for_pacey_summer.pdf

 

 

http://www....

There has been a recent change in the National Newborn Hearing Screening protocol.

Newborns diagnosed with cCMV will now be exempt from the NHSP screen ('screen contraindicated') and instead will be referred straight to audiology for diagnostic testing (auditory brainstem responses). 

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Help us Raise Awareness, Help us Change Lives

We are recruiting to a number of voluntary positions to join our Board of Trustees

We are a successful, national charity with a mission of limiting the devastating impact of congenital CMV (cytomegalovirus) for those currently affected and for future generations.
We do this by...

Following on from the BBC South East News, BBC Radio Sussex breakfast show interviewed Dawn and Sharon.  And CMV Action got a mention!

2.27 mins in to 2.32 mins

https://www.bbc.co.uk/sounds/play/p07bw4y1

The National Childbirth Trust Information Centre has almost 1 million visitors every quarter so this is a really key place to have CMV risk reduction advice available to parents.

...

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Our Stories

June 2014 I found out I had CMV in pregnancy and thought I would share my experience in the hope that it might help (sorry if this is a bit lengthy!) All had been well at my 12 week... Read more
2012 Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s... Read more

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