Social Media Support Groups

     

Listed here a some of the support groups and social media pages available to help people affected by CMV.

We are not responsible for the content of theses groups and external links.

CMV Action UK https://www.facebook.com/CMVAction

CMV Mommies https://www.facebook.com/groups/218264801533244/

CMV Family Support https://www.facebook.com/groups/828342997176100/

Supporting UK CMV families https://www.facebook.com/groups/372198926159/

CMV Friends and Family US https://www.facebook.com/groups/417930608257146/

CMV Advocacy Group USA https://www.facebook.com/groups/111579365608685/?fref=ts

Cortical Visual Impairment https://www.facebook.com/groups/169027052659/

Polymicrogyria Family Support UK https://www.facebook.com/groups/344031389038023/

PMG Awareness Organisation USA https://www.facebook.com/groups/PMGawareness/

CMV Polish group      https://www.facebook.com/groups/1012619822134426/?__mref=message_bubble

CMV Families Ireland   https://www.facebook.com/groups/256608334755554

Israel CMV Support   https://www.facebook.com/groups/175740509473286/

 

Social Media Information and equipment groups

congenital CMV news      https://www.facebook.com/search/top/?q=congenital%20cmv%20     

UK DLA Parent Sharing  https://www.facebook.com/groups/141964685818509/

For sale preloved special needs equipment  https://www.facebook.com/groups/100310213409356/

Special needs equipment Buy Sell Swap    https://www.facebook.com/groups/SNEUK/

Fred Storey Super Saver Page  https://www.facebook.com/groups/433614973384226/

Children’s DLA discount tips  https://www.facebook.com/groups/28639938907/

     

Our Stories

Jamie-CMV
Hello, my son’s name is Jamie and he is 14 months old.  He was born with congenital CMV. Pregnancy wise, everything was normal, I had 5 scans, all fine... It was only 3 weeks... Read more
Our family consists of my husband, Yoav, and our two daughters, Maya and Leila. Our youngest daughter, Leila, was born with congenital cytomegalovirus (cCMV) and has unilateral hearing loss... Read more

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