Social Media Support Groups

     

Listed here a some of the support groups and social media pages available to help people affected by CMV.

We are not responsible for the content of theses groups and external links.

CMV Action UK https://www.facebook.com/CMVAction

CMV Action UK - family support https://www.facebook.com/profile.php?id=335321217452204&ref=br_rs

Supporting UK CMV families https://www.facebook.com/groups/372198926159/

CMV Awareness https://www.facebook.com/groups/429050184370965/

CMV Mommies (based in USA) https://www.facebook.com/groups/218264801533244/

CMV Friends and Family US https://www.facebook.com/groups/417930608257146/

CMV Advocacy Group USA https://www.facebook.com/groups/111579365608685/?fref=ts

Cortical Visual Impairment https://www.facebook.com/groups/169027052659/

Polymicrogyria Family Support UK https://www.facebook.com/groups/344031389038023/

PMG Awareness Organisation USA https://www.facebook.com/groups/PMGawareness/

CMV Polish group      https://www.facebook.com/groups/1012619822134426/?__mref=message_bubble

CMV Families Ireland   https://www.facebook.com/groups/256608334755554

Israel CMV Support   https://www.facebook.com/groups/175740509473286/

 

Social Media Information and equipment groups

congenital CMV news      https://www.facebook.com/search/top/?q=congenital%20cmv%20     

UK DLA Parent Sharing  https://www.facebook.com/groups/141964685818509/

For sale preloved special needs equipment  https://www.facebook.com/groups/100310213409356/

Special needs equipment Buy Sell Swap    https://www.facebook.com/groups/SNEUK/

Fred Storey Super Saver Page  https://www.facebook.com/groups/433614973384226/

Children’s DLA discount tips  https://www.facebook.com/groups/28639938907/

     

Our Stories

2015 We found out in January 2017 just after Gabe’s first birthday that he had Congenital CMV.  I had a great pregnancy and a delivery with no problems. However he was born with... Read more
It all started on the day of my 20 week scan which was also the day of my 20th birthday, the worst day of my life. I never had any worries as I had a straightforward 12... Read more

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