Research on children affected by CMV.


2021 Study re: Quality of Life of Children with congenital CMV - University of Southampton

Many thanks to those who have responded.  This is now closed.  We will publish the results in due course.

Would you like to be involved in a study about the quality of life of children with congenital CMV?

Researchers at the University of Southampton are carrying out a research study about the quality of life and behaviour of children and young people affected by congenital Cytomegalovirus (CMV). They are inviting families who have a child who has been affected with congenital CMV (even if they have no problems from CMV) to participate in this study. This will help them to evaluate the impact that congenital CMV has on children and young people in the UK. CMV Action has agreed to help them with this study by approaching families affected by CMV.

If you agree to take part in the study, you will be sent some online questionnaires to complete at a time that suits you. The questionnaires will ask about your child’s physical, emotional, psychological and social functioning. There will also be a questionnaire asking about your own wellbeing. Depending on your child’s age, you may also be sent some questionnaires for your child to complete, if they are able, to about their opinions on their own physical, emotional, psychological and social functioning. The questionnaires will take no longer than 25 minutes for you to complete and 15 minutes for your child to complete. You can complete them at home.

The information you give us will help us to assess the quality of life of children and young people with congenital CMV in the UK. You will also receive a £20 gift voucher when we receive your questionnaires to thank you for your time.

Taking part in this study is completely voluntary. You can choose whether you would like to take part or not.

You will be sent some more information about the study.

The results of this study will form part of a Masters project and we plan to share the results on the CMV Action website and publish the data in an academic journal.

2020 Study re: Cognition and Behaviour in Children affected by CMV - University of Huddersfield

Thank you to those who took part in our study into cognition, behaviour and cCMV. We have had an incredible response from the CMV Action community, and met our targets already, so we have now closed the study. Thank you once again to anyone who took part – and also to anyone who planned to and didn’t get the chance! It is volunteers like you who make our research possible.

We now have the exciting job of analysing all of this new data. This will take us a few months, but CMV Action will feature an update on what we find out when the results are available. Those of you who took part and said you’d like to hear will also receive a summary direct to your inbox.

If you have any questions, please feel free to contact me directly on

Take part in a new research study into cCMV and child development


I am a researcher in developmental psychology based at the University of Huddersfield. I am contacting you because you are on the mailing list for CMV Action. I am trying to understand more about how differences in the way children’s brains process information might explain differences in how they behave in everyday life. I want to find out whether these differences between children are related to whether or not they had CMV at birth.

If you have a child aged between 5 and 11, you can get involved with this online study, whether or not your child had CMV at birth. If you have more than one child, you may complete this study once for each child. To thank you for taking part in the study, we will provide you with a £5 voucher for

The study has an online parent questionnaire for you to complete (15 to 20 minutes), and then some short online computer games for your child (15 minutes), so you must both be in the room if you decide to take part. It should take no more than a total of 35 minutes.

If you are interested, the link below provides more information and an opportunity to take part:

If you have any questions, please feel free to contact me directly on
Kind regards,

Dr Jenny Retzler | Twitter: 

01484 471474
Department of Psychology (EK1/12)
University of Huddersfield, HD1 3DH, United Kingdom

Researcher: Kate Ralph (Medical Sciences Masters Student at University of Southampton)

ERGO ID: 61440

Supervisors: Dr Christine Jones (Associate Professor of Paediatric Infectious Diseases), Dr Kim Bull (Lecturer in Psychology)


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