Other Charities


ARC www.arc-uk.org  0845 077 2290

helps parents and healthcare professional through antenatal screening and its consequences

Tommy's  www.tommys.org  0207 398 3400

offers support for miscarriage, premature births and still birth

BLISS www.bliss.org.uk 0500 618 140

advice and support to parents of premature and sick babies

Contact a Family: www.cafamily.org.uk 0808 808 3555

puts families with similar needs in touch with each other

Homestart: www.home-start.org.uk 

voluntary organisation offering support within and out of the home

Kids: www.kids.org.uk 

information, support  and network of play centres/activities

Mencap: www.mencap.org.uk

National Autistic Society: www.nas.org.uk 0808 800 410

Cerebra www.cerebra.org.uk 0800 328 1159

to improve lives of children with brain related conditions – includes a sleep service

Dyspraxia Foundation www.dyspraxiafoundation.org.uk 

Portage www.portage.org.uk 0121 244 1807

home visiting education system for preschoolers

SCOPE www.scope.org.uk 0800 800 3333 or 020 7619 7296 helpline@scope.org.uk

Young Minds  www.youngminds.org.uk

the UK’s leading charity committed to improving the emotional wellbeing and mental health of children and young people.


NDCS: www.ncds.org.uk, 0808 800 8880

Auditory Verbal www.avuk.org

Bicester – info@avvuk.org.uk 01869 321492

London – avuklondon@avuk.org  020 7404 3885

Auditory Processing Disorder  ais@southampton.ac.uk Southampton University 023 8059 9608

CICS Tricia Kemp info@cicsgroup.org.uk  www.cicsgroup.org.uk 020 8876 8605 (Also regional groups)

Ear Foundation info@earfoundation.org.uk 0115 942 1985 www.earfoundation.org.uk  Nottingham.  Advice, courses.

Elizabeth Foundation www.elizabeth-foundation.org 023 9237 2735 

Preschool deaf children – offers distance learning

Mental Health, CAMHS www.swlstg-tr.nhs.uk/our-services/deaf  High Trees – South West London & St Georges – Deaf CAMHS 01622 741 881

Speech Language and Hearing Centre -  St Christophers Place www.speech-Language.co.uk 020 783 3834, SALT - london


Sense - www.sense.org.uk 0300 330 9256

for deafblind and those with sensory impairments

RNIB  -  http://www.rnib.org.uk/   2014 Royal National Institute of Blind People Registered Charity Number 226227, 105 Judd Street, London WC1H 9NE

Nystagus Network  www.nystagmus.org

Nystagmus network is the leading patient information, support and scientific research charity for nystagmus in Europe.

Scottish Sensory Centre  www.ssc.education.ed.ac.uk

educational resources for everyone who is involved in the education of deaf children, deafblind children and visually impaired children and young people, the young people themselves and their families.

Seeability  http://www.seeability.org/

supporting people who have multiple disabilities including visual impairment, learning and physical disabilities, mental health difficulties, acquired brain injury and life limiting conditions.

Wonder Baby  http://www.wonderbaby.org/

for parents of young children with visual impairments as well as children with multiple disabilities.


IPSEA Independent Panel for Special Education Advice www.ipsea.org.uk  0800 018 4016

SEN Legal www.senlegal.co.uk  

ACE EDUCATION ADVICE  www.ace-ed.org.uk

provides advice and information to parents and carers on a wide range of school based issues including exclusion, admissions, special education needs.

Prospect (formerly Parent Partnership) https://www.prospect.org.uk/our-industries/education-services/parents

information, advice and support for families with children who have SEN

SOS-SEN  www.sossen.org.uk

a free, friendly, confidential telephone helpline for parents and others seeking information and advice on special educational needs. 0208 538 3731

Sibs  www.sibs.org.uk

the only UK charity representing the needs of siblings of disabled people. Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations.


Sands - stillbirth and neonatal death www.sands.org.uk  


Our Stories

April 1982 I guess I had a pretty typical childhood with some exceptions.  Here is what my mother has to say: “Kristen was born 10:58am on April 5th, 1982 weighing 6lbs 1oz after... Read more
January 1999 On the 20th January 1999 our lives changed forever. Our second daughter Chloe was born after a very difficult pregnancy and poor intrauterine growth. She was imediately... Read more

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Reg. charity no: 1171773