ARC www.arc-uk.org 0845 077 2290
helps parents and healthcare professional through antenatal screening and its consequences
Tommy's www.tommys.org 0207 398 3400
offers support for miscarriage, premature births and still birth
BLISS www.bliss.org.uk 0500 618 140
advice and support to parents of premature and sick babies
Contact a Family: www.cafamily.org.uk 0808 808 3555
puts families with similar needs in touch with each other
voluntary organisation offering support within and out of the home
information, support and network of play centres/activities
National Autistic Society: www.nas.org.uk 0808 800 410
Cerebra www.cerebra.org.uk 0800 328 1159
to improve lives of children with brain related conditions – includes a sleep service
Dyspraxia Foundation www.dyspraxiafoundation.org.uk
Portage www.portage.org.uk 0121 244 1807
home visiting education system for preschoolers
Young Minds www.youngminds.org.uk
the UK’s leading charity committed to improving the emotional wellbeing and mental health of children and young people.
NDCS: www.ncds.org.uk, 0808 800 8880
Auditory Verbal www.avuk.org
Bicester – firstname.lastname@example.org 01869 321492
London – email@example.com 020 7404 3885
Auditory Processing Disorder firstname.lastname@example.org Southampton University 023 8059 9608
Elizabeth Foundation www.elizabeth-foundation.org 023 9237 2735
Preschool deaf children – offers distance learning
Mental Health, CAMHS www.swlstg-tr.nhs.uk/our-services/deaf High Trees – South West London & St Georges – Deaf CAMHS 01622 741 881
Speech Language and Hearing Centre - St Christophers Place www.speech-Language.co.uk 020 783 3834, SALT - london
Sense - www.sense.org.uk 0300 330 9256
for deafblind and those with sensory impairments
RNIB - http://www.rnib.org.uk/ 2014 Royal National Institute of Blind People Registered Charity Number 226227, 105 Judd Street, London WC1H 9NE
Nystagus Network www.nystagmus.org
Nystagmus network is the leading patient information, support and scientific research charity for nystagmus in Europe.
Scottish Sensory Centre www.ssc.education.ed.ac.uk
educational resources for everyone who is involved in the education of deaf children, deafblind children and visually impaired children and young people, the young people themselves and their families.
supporting people who have multiple disabilities including visual impairment, learning and physical disabilities, mental health difficulties, acquired brain injury and life limiting conditions.
Wonder Baby http://www.wonderbaby.org/
for parents of young children with visual impairments as well as children with multiple disabilities.
STATEMENT / EHC
IPSEA Independent Panel for Special Education Advice www.ipsea.org.uk 0800 018 4016
SEN Legal www.senlegal.co.uk
ACE EDUCATION ADVICE www.ace-ed.org.uk
provides advice and information to parents and carers on a wide range of school based issues including exclusion, admissions, special education needs.
Prospect (formerly Parent Partnership) https://www.prospect.org.uk/our-industries/education-services/parents
information, advice and support for families with children who have SEN
a free, friendly, confidential telephone helpline for parents and others seeking information and advice on special educational needs. 0208 538 3731
the only UK charity representing the needs of siblings of disabled people. Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations.
Sands - stillbirth and neonatal death www.sands.org.uk