At CMV Action we aim to provide information and support to families. We empower parents to work effectively with professionals and advocate on behalf of families affected by CMV.
There are many charities and groups that can help you.
Self help from the Citizen’s Advice
Cerebra is a national charity, for parents and carers who have a child aged 0-16, with a neurological condition. This includes a range of conditions, such as Epilepsy, ADHD, Downs Syndrome and acquired brain injuries. The Vision is that every family that includes a child with a brain condition will have the chance to discover a better life together. Cerebra’s Services include the following:
- A sleep service with trained practitioners
- A lending library featuring sensory toys and books covering a range of topics relating to brain conditions
- A Legal Entitlements and Problem-Solving project offering assistance with the legal barriers that families of children with brain conditions face.
- A Cerebra Innovation Centre that makes bespoke products for children, offering fun and practical designs when a need cannot be met.
- Fully downloadable Parent Guides designed to help families access the services that their children need, and are entitled to.
The National Deaf Children’s Society (NDCS) is the leading charity for deaf children and young people. They provide impartial information and individual advocacy on every aspect of childhood deafness. They can help with welfare rights and benefit claims, making education choices, advising on health, audiology and technology.
Help with entitlement to benefits and services.
Disability information, support and services.
Independent helpline for SEN
0345 300 1348 - firstname.lastname@example.org
Caudwell Children is a registered charity that provides emotional and practical support to disabled children and their families.
Autism Service – ASD Assessments, OT Sensory Pathway Assessments, Workshops for parents and children aged 4 -11 years.
Family Support – families with support, signposting and information at the point of diagnosis or during treatment.
Equipment – funding towards mobility, sensory and specialist sports equipment.
Treatment – funding towards vital treatments that can dramatically change or save a child’s life.
Therapy – access to therapy programmes for children with cerebral palsy, brain injuries and other associated conditions
Supported Breaks – teaching practical life skills through activity programmes, family trips and accredited courses.
If you have received help from a charity or organisation please let us know and we can add them to the list.