Education and Health Care Information

     

At CMV Action we aim to provide information and support to families. We empower parents to work effectively with professionals and advocate on behalf of families affected by CMV.

There are many charities and groups that can help you.

http://www.adviceguide.org.uk/

Self help from the Citizen’s Advice

http://www.ipsea.org.uk/news/2014/education-health-and-care-plan-checklist

Checklist for Education and Health Care Plans
 

Cerebra is a national charity, for parents and carers who have a child aged 0-16, with a neurological condition. This includes a range of conditions, such as Epilepsy, ADHD, Downs Syndrome and acquired brain injuries. The Vision is that every family that includes a child with a brain condition will have the chance to discover a better life together. Cerebra’s Services include the following:

  • A sleep service with trained practitioners
  • A lending library featuring sensory toys and books covering a range of topics relating to brain conditions
  • A Legal Entitlements and Problem-Solving project offering assistance with the legal barriers that families of children with brain conditions face.
  • A Cerebra Innovation Centre that makes bespoke products for children, offering fun and practical designs when a need cannot be met.
  • Fully downloadable Parent Guides designed to help families access the services that their children need, and are entitled to.

http://www.ndcs.org.uk/

The National Deaf Children’s Society (NDCS) is the leading charity for deaf children and young people. They provide impartial information and individual advocacy on every aspect of childhood deafness. They can help with welfare rights and benefit claims, making education choices, advising on health, audiology and technology.

http://www.cafamily.org.uk/know-your-rights/

Help with entitlement to benefits and services.

http://www.scope.org.uk/support

Disability information, support and services.

http://www.sossen.org.uk/

Independent helpline for SEN

www.caudwellchildren.com

0345 300 1348 - charity@caudwellchildren.com

Caudwell Children is a registered charity that provides emotional and practical support to disabled children and their families.

Autism Service – ASD Assessments, OT  Sensory Pathway Assessments, Workshops for parents and children aged 4 -11 years.

Family Support – families with support, signposting and information at the point of diagnosis or during treatment.

Equipment – funding towards mobility, sensory and specialist sports equipment.

Treatment – funding towards vital treatments that can dramatically change or save a child’s life.

Therapy – access to therapy programmes for children with cerebral palsy, brain injuries and other associated conditions

Supported Breaks – teaching practical life skills through activity programmes, family trips and accredited courses.

  

If you have received help from a charity or organisation please let us know and we can add them to the list.

     

Our Stories

My daughter was born with congenital CMV. I live in the U.S. and I had never heard of CMV before my pregnancy, nor had any of my friends or family who had normal pregnancies. Throughout... Read more
January 2009 My wife’s twelve week scan showed two little people waving at us, practically sat side by side!! I blinked thinking my eyes were blurred... and then told the sonographer... Read more

Latest Events

Reg. charity no: 1171773