Our organisation is supported by our wonderful fundraisers. They tirelessly raise money and awareness.

Sunday 03 October 2021
The London Marathon is an iconic race and we were lucky enough to get 1 place in the ballot back in 2020 which was rolled over and now is finally...
Sunday 17 October 2021
Lorienne is running the Oxford Half Marathon for CMV Action in memory of the beautiful Eva Marie Johnson and for her parents Tim & Ang whose...
Friday 31 December 2021
  'Our daughter Orla was born with CMV. She is deaf in her right ear with some hearing loss in her left and has brain abnormalities. I am...

Our Stories

February 2014 Our family consists of my husband, Yoav, and our two daughters, Maya and Leila. Our youngest daughter, Leila, was born with congenital cytomegalovirus (cCMV) and has... Read more
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home... Read more

Latest Events

Reg. charity no: 1171773