Fundraisers

     

Our organisation is supported by our wonderful fundraisers. They tirelessly raise money and awareness.

Sunday 05 May 2019
Alfie, our 4th child and first son was born on 13th December 2018.  At first everything went well, although he was born outside the hospital!...
Sunday 05 May 2019
  I am running the Belfast marathon to raise much needed funding for CMV Action.   Our son Reuben was born in June 2018 and after 3...
Friday 10 May 2019
Janet is having her hair cut short and is using the opportunity to raise money for two charities at the same time! She has been growing her hair...
Saturday 18 May 2019 to Sunday 19 May 2019
Tickets for the CMV Folk Weekend now available! Linda is organising a 2 day all female line up of folk artists in the lovely village of Downham in...
Saturday 08 June 2019 to Sunday 09 June 2019
  Liz is undertaking this challenging event to raise much needed funds for CMV Action. She has an 18 year who is affected by cmv so she...
Sunday 09 June 2019
  It's 35 years since the last one! My good friend Henry Head and his wife had their third child this summer, a little girl called Orla....
Sunday 08 September 2019
  'Our baby boy was born in 2016 with congenital CMV and as a result has profound hearing loss in one ear and a conductive loss in the other...
Sunday 08 September 2019
  We are running the Great North Run 2019 for a charity close to our hearts, CMV Action. As many (if not all) of you know Isobel was...
Sunday 08 September 2019
Kray-James congenital CMV story told by Ash, his daddy Our lives turned upside down when our 20 week scan showed that Kray had bright bowels on...
Friday 31 December 2021
  'Our daughter Orla was born with CMV. She is deaf in her right ear with some hearing loss in her left and has brain abnormalities. I am...
     

Our Stories

Having a child is always a life-changing event, but when our second son Toby was born, we had no idea just how much our future would be altered forever. On the 5th April 2014, Toby shot... Read more
So here's our story - I'm from the UK. I fell pregnant with my first baby back in 2015, I was over the moon everything seemed to be going fine and smoothly until my 20 week scan. I was... Read more

Latest Events

Registered charity no: 1171773