Our organisation is supported by our wonderful fundraisers. They tirelessly raise money and awareness.

Sunday 03 October 2021
The London Marathon is an iconic race and we were lucky enough to get 1 place in the ballot back in 2020 which was rolled over and now is finally...
Sunday 17 October 2021
Lorienne is running the Oxford Half Marathon for CMV Action in memory of the beautiful Eva Marie Johnson and for her parents Tim & Ang whose...
Friday 31 December 2021
  'Our daughter Orla was born with CMV. She is deaf in her right ear with some hearing loss in her left and has brain abnormalities. I am...

Our Stories

December 1997 Lewis was born 3 weeks early on 23rd December 1997 following a normal healthy pregnancy. The labour was not easy, but relatively quick being 4 hours in total but he was... Read more
May 1992 When Ben was born he was surrounded by doctors, so alarm bells immediately started ringing. The doctors didn’t really know what they were dealing with. They didn’t test... Read more

Latest Events

Reg. charity no: 1171773