2017 International CMV Awareness Raising Month


Teddy Bear's Picnics

Throughout the month we are hoping that lots of families and preschools raise awareness of CMV by holding a Teddy Bear's Picnic. Get a group of children together, each with a teddy and have some fun! Please register your event and we will send you a free really cute little bear wearing a CMV Action T shirt. She/He can take centre stage in your photos - you can raise some money if you would like by a raffle to win the teddy, or name/find the teddy.   Please go to register your event   For more information pls see   Teddy Bear's Picnic

 Family Day Saturday, June 17, 2017 - 11:00

Tickets are now on sale for our Family Day out on Saturday 17th June. Anyone with a child affected by CMV is welcome. Come and meet other families, CMV trustees and family supporters. We expect this to be a popular day so book soon. We are asking for a £10 deposit per family but we will refund this on the day. We look forward to seeing you.

Please go to eventbrite to reserve your tickets Eventbrite

This fantastic venue is on a 2.5 acre site adjacent to the A4 in Taplow, near Maidenhead, the Playground is open to children and young adults with all types of special needs, however mild or profound, their siblings and parents/carers. One of our trustees has visited and has seen the variety of activities both inside and outdoors. Outside this includes a zip wire, tree top trail and a castle and inside a playroom, an excellent sensory room and soft play. We feel there is something for everyone whatever their age or needs and whatever the weather!  We really hope you will be able to join us and meet some other families.
The event is free to CMV families though a refundable deposit is required to secure a booking (unfortunately there were quite a few no-shows at last year's event). Our wonderful volunteers will be sorting out some tasty afternoon treats for the kids.  Please bring a picnic lunch and coins for the tea/coffee vending machine. Some activities involve water so a change of clothes too! 

We have exclusive use of the playground and there will be support volunteers and trustees there to chat to.  You are free to use whatever you want. This will be a fun day out for all the family and if you have any queries please contact us at info@cmvaction.org.uk.  Families and friends are welcome but we will need to know numbers in advance.

CMV Training Monday 12th June 10 am

CMV presentation as part of Complex Needs Week at the Ear Foundation in Nottingham

This course is for professionals - Teachers of the Deaf, Audiologists, Intervenors, Teaching Assistants and mainstream teachers. It will raise awareness among the very professionals who work with our little ones. Please encourage them to attend.

Please contact The Ear Foundation for further information. 

As in previous years ……

  • we’ve put together awareness-raising packs for you to use in your local area.  The packs will include: midwives poster, leaflets for pregnant women and our infographics. Why not visit your local GP practice, pharmacy, health centre or antenatal clinic or any local events you may be holding. Please order your Awareness Pack
  • Buy a CMV Action silver awareness ribbon, wristband or T shirt through the CMV Action shop – don’t forget to send us pictures of you wearing any or all of them!  CMV Action Shop
  •  Join the global social media campaign and post your pictures and stories on facebook and twitter using the hashtags and .  

Do let us know what you are up to or if you have any great ideas to raise awareness  email info@cmvaction.org.uk


Our Stories

We noticed Ruby wasn't responding to sound when she was about 18 months old. My GP said she was fine and said I was a worrying first time mum. Without the support of our GP, we paid... Read more
2015 We found out in January 2017 just after Gabe’s first birthday that he had Congenital CMV.  I had a great pregnancy and a delivery with no problems. However he was born with... Read more

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