Casey Ashton

Wednesday, June 30, 2021 - 10:45

Casey intially tasked herself to walk or run 100 miles throughout the course of June but incredibly she has decided to do an extra 50 miles to try and raise even more money. Casey's daughter Reenie has been affected by CMV. At 18 months Reenie was diagnosed with severe damage to her brain consistent with CMV, which then was too late for treatment. Doctors went back to Reenie's 1st blood spot test (at birth) to confirm the infection. If this had been done then (at birth) things could be a lot different. She could have been offered anti viral treatment to lesson the effects of the infection, the anti viral must be given within the first 4 weeks of the babies life. She now has to have regular hearing & eye tests as the effects of CMV can show over time, she may also suffer from other things in future such as cerebral palsy, epilepsy, autism.  Casey wants everyone to know about this infection and understand how severe it can be. Please support Casey & help us raise awareness & help other children & families in the future. Thank you!


Our Stories

My daughter was born with congenital CMV. I live in the U.S. and I had never heard of CMV before my pregnancy, nor had any of my friends or family who had normal pregnancies. Throughout... Read more
Sept 2011 I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her... Read more

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