2019 05 Dan - Tough Mudder, Henley on Thames

Sunday, May 5, 2019 - 09:00

Alfie, our 4th child and first son was born on 13th December 2018.  At first everything went well, although he was born outside the hospital!  Shortly after his birth he was taken into the special care unit, which we thought was just precautionary due to how he was born.  However, just over 12 hours later we were told the heart breaking news that he had 'brain abnormalities' along with other symptoms and they suspected cCMV (congenital Cytomegalovirus).  Shortly afterwards this was confirmed.

We had not heard of CMV prior to Alfie being born.  Over the past few weeks we have realised it seems to be completely unknown in this country even though it is the most common infection at birth in the UK and a major cause of childhood disability.  Congenital CMV is more common than Down's Syndrome and causes more birth defects and childhood deaths than Toxoplasmosis (from cat poo) or Listeriosis (from soft cheese).

We have put together a team of family and friends to take part in a Tough Mudder 10 mile event to raise money for CMV action.  CMV Action are raising awareness of this virus and are working alongside medical professions to help research and provide information on how to reduce this common virus and ultimately eradicate it altogether in the future.

Please donate whatever you can as every little bit counts in helping this small charity.  Anything you can donate will make a big difference to CMV Action.

Please visit CMV Action's website https://www.cmvaction.org.uk as they have lots of information on the virus and their work.

Thank you for donating and supporting CMV Action and helping to raise awareness.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.



Our Stories

I had a very normal, straightforward pregnancy. Other than towards the end, my bump wasn't measuring big enough, so I was sent for 2 growth scans. Both we're fine and baby was also fine... Read more
September 2015   Four weeks before the due date of our second child, Mylo, a breech scan showed he had excessive fluid on his brain and his weight had dropped dramatically... Read more

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