2018 -2020 Henry - Orla's Ultra Project

     
Friday, December 31, 2021 - 12:00

 

'Our daughter Orla was born with CMV. She is deaf in her right ear with some hearing loss in her left and has brain abnormalities. I am planning on running 4 of the toughest Ultra Marathons in Europe to support CMV Action who work tirelessly to help affected families and eradicate the virus'  

Henry & Hannah

Please support in any way you can.

http://orlaup.co.uk

https://www.justgiving.com/fundraising/orlaup-henryhead

These are the Ultra Marathons Henry is hoping compete in ..... what a challenge!

  1. La Sportiva Lavaredo Ultra Trail - 120km, 5,800m ascent. (28th June 2019).
  2. Montane Spine Race - 462km, 16,230m ascent. (Jan 2020).
  3. Ultra Trail du Mont Blanc - 170 km, 10,000m ascent. (Aug 2020).
  4. Berghaus Dragon's Back - 315km, 15,500m ascent. (May 2021).

 

 

     

Our Stories

April 2011 Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she... Read more
Charlie
CMV has left four-year-old daughter Charlie facing a future without her hearing. Charlie’s Mum Lindsey had never heard of CMV during either of her pregnancies, yet she contracted the... Read more

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