2018 -2020 Henry - Orla's Ultra Project

     
Friday, December 31, 2021 - 12:00

 

'Our daughter Orla was born with CMV. She is deaf in her right ear with some hearing loss in her left and has brain abnormalities. I am planning on running 4 of the toughest Ultra Marathons in Europe to support CMV Action who work tirelessly to help affected families and eradicate the virus'  

Henry & Hannah

Please support in any way you can.

http://orlaup.co.uk

https://www.justgiving.com/fundraising/orlaup-henryhead

These are the Ultra Marathons Henry is hoping compete in ..... what a challenge!

  1. La Sportiva Lavaredo Ultra Trail - 120km, 5,800m ascent. (28th June 2019).
  2. Montane Spine Race - 462km, 16,230m ascent. (Jan 2020).
  3. Ultra Trail du Mont Blanc - 170 km, 10,000m ascent. (Aug 2020).
  4. Berghaus Dragon's Back - 315km, 15,500m ascent. (May 2021).

 

 

     

Our Stories

When I was pregnant my baby was measuring small and I had to go for weekly dopplers and fortnightly growth scans. A month before my due date, I was told there was no change in my baby's... Read more
Ava_P_CMV
I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and... Read more

Latest Events

Registered charity no: 1171773