2018 -2020 Henry - Orla's Ultra Project

     
Friday, December 31, 2021 - 12:00

 

'Our daughter Orla was born with CMV. She is deaf in her right ear with some hearing loss in her left and has brain abnormalities. I am planning on running 4 of the toughest Ultra Marathons in Europe to support CMV Action who work tirelessly to help affected families and eradicate the virus'  

Henry & Hannah

Please support in any way you can.

http://orlaup.co.uk

https://www.justgiving.com/fundraising/orlaup-henryhead

These are the Ultra Marathons Henry is hoping compete in ..... what a challenge!

  1. La Sportiva Lavaredo Ultra Trail - 120km, 5,800m ascent. (28th June 2019).
  2. Montane Spine Race - 462km, 16,230m ascent. (Jan 2020).
  3. Ultra Trail du Mont Blanc - 170 km, 10,000m ascent. (Aug 2020).
  4. Berghaus Dragon's Back - 315km, 15,500m ascent. (May 2021).

 

 

     

Our Stories

Siân was born on 11th March 1980, apparently normally after a normal pregnancy. She was small for birth-weight but this was not felt to be a problem – it runs in the family. The first few... Read more
Evie_CMV_5
July 2014 My name is Alex and this is the story of how I came to learn about CMV. January 13th 2014, I was stood staring at the positive pregnancy test in my hand. After 5 months of... Read more

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