We presented the parent's perspective at this workshop on Residual Newborn Bloodspots and CMV testing.  

Many CMV specialists - virologists, researchers, consultants, audiologists - in fact all the top people in the field who know all there is to know about cmv - were there, as was Anne Mackie, the Director of Screening at Public Health England. 

This article explains why we need to raise awareness of cmv.

https://www.bbc.co.uk/news/health-49069408