Our Trustees

     

Our organisation is run by our Trustees. Hard working and unpaid, they strive for CMV awareness every day....

Tom Kelman - Treasurer

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I am a City based Chartered Accountant with over 27 years experience. My most recent experience was as the Director of Finance and Corporate Resources for almost eight years at AAT, a widely recognised not for profit professional membership body. Prior to that I held the role as the Finance Director at Gissings, a fast growing Private Group.

I also have commercial experience as a Director responsible for creating and developing a professional client facing practice within the Gissings Group during my 16 years there. I qualified as a Chartered Acountant with Thomson McLintock which later became part of KPMG.

Jan Pearman

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My darling granddaughter was born with CMV and is severely affected.

In my work as a Teacher of the Deaf I was barely aware of CMV, let alone the possible consequences. How can such a common virus, harmless to most people, be so devastating to a developing baby.
I found it unbelievable that so little was known of CMV – my colleagues, audiologists, doctors, nurses, midwives, health visitors, social workers, friends and family – no one had heard of it.

I want to be involved in raising awareness of CMV, campaigning for better preventative measures until a vaccine becomes available and supporting those families affected.

As a Trustee, I have given talks on CMV and the charity to Teachers of the Deaf, the Ear Foundation, to local Rotary clubs, Golf Club, Lions, etc. which has tied in with fundraising. I have attended NICE meetings, fundraising events and the lovely family parties.

I am also a support volunteer, particularly giving advice on hearing loss and education issues. I update the CMV Action website and Facebook Page. and co ordinate the fundraising. I am generally willing to do what I can - never a dull moment as the charity is going from strength to strength.

Through CMV Action we can bring about change.

Liz Estall

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I have four boys, the youngest two are twins, and one of the twins was diagnosed with CMV at the age of 1.  He had failed his newborn hearing test and had progressive loss.  

It was only after being referred for Cochlear Implants that he had a MRI which revealed scarring on his brain.  It was then that his Guthrie chart was tested and he was diagnosed with Congenital CMV.  

It was at this point that we started to find out all we could about CMV and realized how little was known and how much uncertainty lay ahead.  

The best information and help we could find was talking to other parents who had children affected by CMV.

Sarah Dewar

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I have been involved with CMV Action for about four years as a parent supporter. My son, Louis, had congenital CMV and is now 16 years old. He was not diagnosed until he was three so I am motivated to increase awareness.  My background is in criminal law and I now have a variety of part time jobs.

So far, I have organised the recent CMV Day at the Elizabeth Foundation in Portsmouth and have talked at other events such as the Ear Foundation Day in London.

I have been involved in getting support and preparing some of the stakeholder letters for the ‘We Need To Talk About CMV’ report.

I assist on legal issues, such as Data Protection and have written the volunteer policy, the protocol for support requests and have trained new volunteers.

Caroline and I worked together on the selection and interviews for the Project Manager role.

I have really enjoyed working with Caroline and the other trustees. They are all highly motivated and professional and are combining their trustee roles with looking after children and grandchildren who have been affected by CMV.

I am looking forward to being a Trustee of this fantastic charity.

Kate Munson

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I'm Kate and I live in Kent. I qualified as a midwife in 2017 after a previous career in the media. It was while studying for my degree that my community mentor suggested I do some research into CMV. She was the first person who had ever mentioned it to me and I found the CMV Action website and did their online learning. I was shocked that knowledge about it was not more widespread. I was also involved in my university's midwifery society at the time and suggested a CMV study session. Loads of our members turned up and really enjoyed the session and, like me, could not believe that more people hadn't heard about CMV.
 
When the Trustee position came up I decided to apply. My hope is that I can help spread the word about CMV to women, healthcare workers and students. I'm hoping to get to grips with being a Trustee at the same time as becoming a midwife.

Amy Taylor

Angela Andrews

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I have been a qualified midwife since 2008 and prior to this I was a nurse working mostly in A&E.  I have loved working as both a nurse and a midwife and have been very privileged to work amongst amazing teams. 

We have 4 children our eldest being 5 years old and our youngest being 11 months.  As a family we were faced with congenital CMV with our last baby, George.  We were identified at 24 weeks into this pregnancy as having CMV as a primary infection that most likely occurred during my 10th to 14th week of pregnancy.  

What followed was a scary (even for a midwife) few months of monitoring, scans, uncertainty, and lots of choices and decisions to be made.  Our baby boy was born at 37 weeks and tested at birth, which confirmed congenital CMV, therefore many tests were carried out and a cascade of referrals were made.  It was a scary time for all of us but thankfully, other than some brain calcifications noted on USS at birth, our baby boy George is doing very well. 

At this stage he appears to be unaffected but he will continue to be monitored   We are just so grateful for all the help and support we have been offered and most importantly that our beautiful baby boy is doing well.  No one knows what the future holds for him just yet but we are very grateful for what we have right now and as a family will face any challenges that come our way knowing we have great support.  Ours is a positive story which I was eager to share and so I joined CMV Action as a Trustee and will continue to support CMV Action in any way possible in an attempt to educate about and eradicate CMV.

Suzie Mills

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My daughter was diagnosed at 10 days old with congenital CMV having failed her newborn hearing test and having been born with a petachial rash on her face and body. What followed was a very intense year of monitoring and testing to understand the implications of contracting CMV and we are lucky in that a severe hearing disability seems to be the only outcome. As such, she has recently received double cochlear implants aged 3.5, and is a thriving, intelligent, happy little girl. 
 
We were lucky that we have an amazing NHS system and the John Radcliffe hospital in Oxford to support us but we had never heard of CMV and so, as a result, I recently joined CMV Action on their Board of Trustees. I want to try and help spread awareness of the virus and support the charity with my experience as the Communications Director of an Executive Search firm for the For Purpose sector, in their support for a vaccine and to help educate about this life changing virus. 
 
     

Our Stories

Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It... Read more
Evie_CMV_5
July 2014 My name is Alex and this is the story of how I came to learn about CMV. January 13th 2014, I was stood staring at the positive pregnancy test in my hand. After 5 months of... Read more

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