Our Trustees


Our organisation is run by our Trustees. Hard working and unpaid, they strive for CMV awareness every day....

Tom Kelman - Treasurer

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I am a City based Chartered Accountant with over 27 years experience. My most recent experience was as the Director of Finance and Corporate Resources for almost eight years at AAT, a widely recognised not for profit professional membership body. Prior to that I held the role as the Finance Director at Gissings, a fast growing Private Group.

I also have commercial experience as a Director responsible for creating and developing a professional client facing practice within the Gissings Group during my 16 years there. I qualified as a Chartered Acountant with Thomson McLintock which later became part of KPMG.

Jan Pearman

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My darling granddaughter was born with CMV. She is severely affected but is a strong little lady with the most amazing smile.

In my work as a Teacher of the Deaf I was barely aware of CMV, let alone the possible consequences. How can such a common virus, harmless to most people, be so devastating to a developing baby.
I found it unbelievable that so little was known of CMV – my colleagues, audiologists, doctors, nurses, midwives, health visitors, social workers, friends and family – no one had heard of it.

I want to be involved in raising awareness of CMV and campaigning for better preventative measures until a vaccine becomes available.

As a Trustee, I have given talks on CMV and the charity to Teachers of the Deaf, the Ear Foundation, to local Rotary clubs, Golf Club, Lions, etc. which has tied in with fundraising. I have attended NICE meetings, fundraising events and the lovely family parties.

I am also a support volunteer, particularly giving advice on hearing loss and education issues. I help with updating the CMV Action website and Facebook Page. and co ordinating the fundraising. I am generally willing to do what I can - never a dull moment as the charity is going from strength to strength.

Through CMV Action we can bring about change.

Liz Estall

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I have four boys, the youngest two are twins, and one of the twins was diagnosed with CMV at the age of 1.  He had failed his newborn hearing test and had progressive loss.  

It was only after being referred for Cochlear Implants that he had a MRI which revealed scarring on his brain.  It was then that his Guthrie chart was tested and he was diagnosed with Congenital CMV.  

It was at this point that we started to find out all we could about CMV and realized how little was known and how much uncertainty lay ahead.  

The best information and help we could find was talking to other parents who had children affected by CMV.

Sarah Dewar

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I have been involved with CMV Action for about four years as a parent supporter. My son, Louis, had congenital CMV and is now 16 years old. He was not diagnosed until he was three so I am motivated to increase awareness.  My background is in criminal law and I now have a variety of part time jobs.

So far, I have organised the recent CMV Day at the Elizabeth Foundation in Portsmouth and have talked at other events such as the Ear Foundation Day in London.

I have been involved in getting support and preparing some of the stakeholder letters for the ‘We Need To Talk About CMV’ report.

I assist on legal issues, such as Data Protection and have written the volunteer policy, the protocol for support requests and have trained new volunteers.

Caroline and I worked together on the selection and interviews for the Project Manager role.

I have really enjoyed working with Caroline and the other trustees. They are all highly motivated and professional and are combining their trustee roles with looking after children and grandchildren who have been affected by CMV.

I am looking forward to being a Trustee of this fantastic charity.

Kate Munson

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I'm Kate and I live in Kent. I qualified as a midwife in 2017 after a previous career in the media. It was while studying for my degree that my community mentor suggested I do some research into CMV. She was the first person who had ever mentioned it to me and I found the CMV Action website and did their online learning. I was shocked that knowledge about it was not more widespread. I was also involved in my university's midwifery society at the time and suggested a CMV study session. Loads of our members turned up and really enjoyed the session and, like me, could not believe that more people hadn't heard about CMV.
When the Trustee position came up I decided to apply. My hope is that I can help spread the word about CMV to women, healthcare workers and students. I'm hoping to get to grips with being a Trustee at the same time as becoming a midwife.

Amy Taylor


Our Stories

July 2014 My name is Alex and this is the story of how I came to learn about CMV. January 13th 2014, I was stood staring at the positive pregnancy test in my hand. After 5 months of... Read more
December 2013 This is our Evalyn Rose, she was a long awaited baby.  My husband and I were told we could not have any more children due to fertility issues, we tried a round of... Read more

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Registered charity no: 1171773