Just some of the things we achieved in 2018

  • Supported over 500 families – through the website, phone calls, emails and social media.
  • Had nearly 20K website visits
  • Connected with over 9000 midwives and medical professionals by attending and presenting at – 

Feb  - NHS training at Northwick Park, Harrow

April – John Moores Liverpool University - 1st year midwifery students

May  - Canterbury Christchurch University – midwifery conference

May   - Keele University Many Voices Day – medical professionals

May   - Primary Care Public Health Conference, Birmingham NEC

May   - University of West London Midwifery Conference

Nov  - Teeside University 1st year midwifery students

Nov – RCM Conference, West Midlands

Nov – An update on Infections in Pregnancy, Royal College of Gynaecologists and Obstetricians,

Nov – Infectious Diseases in Pregnancy Day – London Northwest University Healthcare Trust

  • Commissioned YHEC to research and report on Counting the Cost of CMV
  • Conducted a parents survey for the report
  • Research article published in the British Medical Journal (BMJ) ‘Economic cost of congenital CMV in the UK’
  • Collaborated on a survey to gain information in support of a request to Public Health England to maintain newborn blood spot cards and not to destroy after 5 years
  • Educated 150 midwives via our ilearning programme
  • Featured in national articles including Daily Mail, Evening Standard and BBC London
  • Sent our 64 awareness raising packs to be placed in doctor’s surgeries, hospitals, etc
  • Collaborated with over 30 countries
  • Supported researcher’s bids for funding
  • Supported Research programmes and surveys including trials for anti virals for children up to 4 years
  • Supported sporting fundraising events including Boxted Run, Swindon 5K, Leeds 10K, Skydiving, Great North Run, Manchester 10K, Spartan Race and the Philadelphia Marathon
  • Supported Fundraising Evenings, Charity Ball, Nursery wear pink/blue day, Golf Captain’s Day
  • Collaborated with other charities - Sands, NDCS, CICS, AVUK, Child Bereavement UK, BLISS, The Elizabeth Foundation
  • Held 4 face to face Trustee meetings and many conference calls
  • Had support calls with our medical advisors to ensure we support families in the best possible way. 

Thank you to everyone who has made this happen – together we can bring about change.



Our Stories

Hi my name is Suzanne, I'm a mum to an only child.. Ethan Isaiah. Ethan was born in May 2011, 4 weeks before his due date. I'd had a perfect pregnancy up until a scan at 34 weeks which... Read more
September 2010 My name is Julie Anne Stansfield and this is my story of when and how CMV changed my life. On the 12th February 2010, I found out I was pregnant, it seemed like a... Read more

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