2018

     

 Just some of the things we achieved in 2018

  • Supported over 500 families – through the website, phone calls, emails and social media.
  • Had nearly 20K website visits
  • Connected with over 9000 midwives and medical professionals by attending and presenting at – 

Feb  - NHS training at Northwick Park, Harrow

April – John Moores Liverpool University - 1st year midwifery students

May  - Canterbury Christchurch University – midwifery conference

May   - Keele University Many Voices Day – medical professionals

May   - Primary Care Public Health Conference, Birmingham NEC

May   - University of West London Midwifery Conference

Nov  - Teeside University 1st year midwifery students

Nov – RCM Conference, West Midlands

Nov – An update on Infections in Pregnancy, Royal College of Gynaecologists and Obstetricians,

Nov – Infectious Diseases in Pregnancy Day – London Northwest University Healthcare Trust

  • Commissioned YHEC to research and report on Counting the Cost of CMV
  • Conducted a parents survey for the report
  • Research article published in the British Medical Journal (BMJ) ‘Economic cost of congenital CMV in the UK’
  • Collaborated on a survey to gain information in support of a request to Public Health England to maintain newborn blood spot cards and not to destroy after 5 years
  • Educated 150 midwives via our ilearning programme
  • Featured in national articles including Daily Mail, Evening Standard and BBC London
  • Sent our 64 awareness raising packs to be placed in doctor’s surgeries, hospitals, etc
  • Collaborated with over 30 countries
  • Supported researcher’s bids for funding
  • Supported Research programmes and surveys including trials for anti virals for children up to 4 years
  • Supported sporting fundraising events including Boxted Run, Swindon 5K, Leeds 10K, Skydiving, Great North Run, Manchester 10K, Spartan Race and the Philadelphia Marathon
  • Supported Fundraising Evenings, Charity Ball, Nursery wear pink/blue day, Golf Captain’s Day
  • Collaborated with other charities - Sands, NDCS, CICS, AVUK, Child Bereavement UK, BLISS, The Elizabeth Foundation
  • Held 4 face to face Trustee meetings and many conference calls
  • Had support calls with our medical advisors to ensure we support families in the best possible way. 

Thank you to everyone who has made this happen – together we can bring about change.

 

     

Our Stories

Dawn has always wanted to write a book -  her daughter is now 23 and this is what she says 'This is a true and short story about a Mother's special journey bringing up her daughter... Read more
April 2011 Lydia is one of non-identical twins, born on 6th April 2011 at 38 weeks in Welwyn Garden City with her brother Isaac.   Lydia was very small at 1.8kg (3lb15oz) so she... Read more

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