Recommendation 5

     

Recommendation 5Invest in research to support clinical decision-making.   

Information on congenital CMV is limited and what does exist is out of date. This is severely hampering our ability to monitor treatments and longer-term outcomes for children affected by cCMV. 

More investment is needed to gather knowledge and data on which we can make sound, evidence-based clinical decisions. Parents would welcome tests at birth that could provide guidance on the severity of symptoms their child is likely to suffer from. 

The safety and cost effectiveness of treatment during pregnancy should be evaluated. While this clearly includes research into the efficacy and cost of new drugs, attention should also be given to new diagnostic techniques such as foetal MRI or blood sampling for early identification of babies who may benefit from anti-viral treatment. 

 

     

Our Stories

November 2016 Katie, Clara's mum, says .... 30 weeks into my pregnancy with my second child I was informed in a phone call that I had contracted CMV in pregnancy. I wasn't given any... Read more
Anna Rose
December 2013   On 27th December 2013 at 6.31am, our beautiful baby Anna Rose was born. 7lb 2.5oz of pure scrumminess, we were elated to have a little girl to add to our family. On... Read more

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