The Cerebral Palsy Alliance, University of Sydney, Australia

     

International collaboration!

The Cerebral Palsy Alliance at the University of Sydney in Australia, are commencing a similar study to our  'Counting the Costs of CMV.' They want to investigate the financial cost of living with cerebral palsy from a families’ perspective. For this they will collaborate closely with families, carers and people living with cerebral palsy from the start to create a meaningful and inclusive mechanism to record the information related to personal expenses associated with cerebral palsy.

They have approached CMV Action for help with the questionnaire, survey and analysis.  We have liaised with them and put them in touch with our colleagues at York Health Economic Consortium, who we commissioned for the report.

 

 
     

Our Stories

March 1999 Hi, I am Alicia Parks, I am very happy. Despite all my problems, I am very socially aware, alert young lady, and very mischievous. My mum and dad are Mandy & Neil. (I... Read more
2012 Mike’s birth was nothing but dramatic, the moment my waters broke they were thick with meconium. I was allowed to labour but the doctors struggled to keep a good trace on Mike’s... Read more

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