The Cerebral Palsy Alliance, University of Sydney, Australia

     

International collaboration!

The Cerebral Palsy Alliance at the University of Sydney in Australia, are commencing a similar study to our  'Counting the Costs of CMV.' They want to investigate the financial cost of living with cerebral palsy from a families’ perspective. For this they will collaborate closely with families, carers and people living with cerebral palsy from the start to create a meaningful and inclusive mechanism to record the information related to personal expenses associated with cerebral palsy.

They have approached CMV Action for help with the questionnaire, survey and analysis.  We have liaised with them and put them in touch with our colleagues at York Health Economic Consortium, who we commissioned for the report.

 

 
     

Our Stories

Written by her grandmother Jan – now a Trustee of CMV Action. 16th July 2012. That day changed our lives.   James (my son) and Lucy were expecting their first child, a girl. It... Read more
Finley-and-Harley-cmv
September 2010 My name is Julie Anne Stansfield and this is my story of when and how CMV changed my life. On the 12th February 2010, I found out I was pregnant, it seemed like a... Read more

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