The Cerebral Palsy Alliance at the University of Sydney in Australia, are commencing a similar study to our 'Counting the Costs of CMV.' They want to investigate the financial cost of living with cerebral palsy from a families’ perspective. For this they will collaborate closely with families, carers and people living with cerebral palsy from the start to create a meaningful and inclusive mechanism to record the information related to personal expenses associated with cerebral palsy.
They have approached CMV Action for help with the questionnaire, survey and analysis. We have liaised with them and put them in touch with our colleagues at York Health Economic Consortium, who we commissioned for the report.