The Cerebral Palsy Alliance, University of Sydney, Australia

     

International collaboration!

The Cerebral Palsy Alliance at the University of Sydney in Australia, are commencing a similar study to our  'Counting the Costs of CMV.' They want to investigate the financial cost of living with cerebral palsy from a families’ perspective. For this they will collaborate closely with families, carers and people living with cerebral palsy from the start to create a meaningful and inclusive mechanism to record the information related to personal expenses associated with cerebral palsy.

They have approached CMV Action for help with the questionnaire, survey and analysis.  We have liaised with them and put them in touch with our colleagues at York Health Economic Consortium, who we commissioned for the report.

 

 
     

Our Stories

It all started on the day of my 20 week scan which was also the day of my 20th birthday, the worst day of my life. I never had any worries as I had a straightforward 12... Read more
May 1992 When Ben was born he was surrounded by doctors, so alarm bells immediately started ringing. The doctors didn’t really know what they were dealing with. They didn’t test... Read more

Registered charity no: 1171773