What is CMV?

CMV, or Cytomegalovirus, is a common virus that can infect people of all ages. Once CMV is in a person’s body, it stays there for life. Most healthy adults and children who become infected will have no signs or symptoms and no long term effects from CMV. It can however pose serious risks to unborn babies if a pregnant woman catches it for the first time. Congenital CMV is when a baby has been infected before birth. It is one of the leading causes of hearing loss in children and one of the main causes of childhood disability.

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2 to 3

babies everyday will be damaged by CMV

1 in 5

children with the virus will develop permanent problems due to CMV

25%

of child hearing loss is caused by CMV infection

Reducing the Risk

Avoid sharing cutlery and cups

Avoid putting things in your mouth that have just been in a child’s mouth. When possible, try not to share food, cups or cutlery, or put your child’s dummy in your mouth.

Wash any items which may have been in contact with a child’s saliva or urine.

Wash hands

Wash your hands after contact with a child’s urine or saliva. For example, try to make a habit of cleaning your hands after changing a nappy, feeding a child or wiping a child’s nose or mouth.

Wash your hands well for 20 seconds with soap and water. If you do not have access to soap and water, use hand sanitiser.

Avoid Kissing on the Mouth

Avoid getting saliva in your mouth when kissing a child. You can do this by trying to give more kisses on the head, together with a big hug.

Our Recommendations

Wash Hands

Advice

Risk reduction advice should be routinely given to pregnant women.

Guidelines

Guidelines

Produce and implement clinical guidelines and pathways for testing, improved diagnosis and management of cCMV.

Screening

Targeted Screening

Targeted screening for cCMV in children who fail a newborn hearing test to enable affected children to receive treatment much sooner.

Treatment

Universal Screening

Universal screening for cCMV to enable affected children to receive treatment much sooner.

Research

Research

Invest in research to support clinical decision making.

Vaccine

Vaccine

Develop a vaccine to end CMV. Eradicate CMV once and for all.

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Our Stories

Jamie

Hello, my son’s name is Jamie and he is 14 months old.  He was born…
Our Stories

Seb

Seb was born December 2019 with congenital CMV. Having contracted CMV at 8 weeks pregnant…
Our Stories

Finley & Harley

September 2010 My name is Julie Anne Stansfield and this is my story of when…
Diagnosis in pregnancyOur Stories

Ben

On the 19th of March 2015, our little angel Ben was born sleeping at 30+5…
Our Stories

Megan

February 2010 I fell pregnant with my beautiful daughter Megan in 2009. There were a…
Our Stories

Lewis

December 1997 Lewis was born 3 weeks early on 23rd December 1997 following a normal…
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Get Involved

Fundraise

Fundraising

We do not receive any government funding and it costs our charity £20,000 a year to help and support families affected by CMV.

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Volunteer

Volunteering

CMV Action is a small charity with only 2 part time employees but we potentially need to reach every one of the 750,000 women who give birth in the UK every year. Find out ways to volunteer with CMV Action..

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Raise Awareness

Raising Awareness

At CMV Action our mission is to limit the devastating impact of CMV for those currently affected and for future generations. We offer advice and support to anyone affected by congenital CMV and we work with medical professionals, support research and raise awareness of the virus.

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Latest Tweets

Childcare providers are largely unaware they've an occupational risk for CMV,the #1 birth defects virus & they often don't educate their staff on the risks. Does your nursery? #nursery @busybeesuk @BHFamiliesUK @_KidsPlanet @JustChildcare @Kiddicaru https://bit.ly/36J9uMD

"We found out Bella-Ann had cCMV at 6 wks old after she was diagnosed as deaf in 1 ear, she's developing into an amazing little girl with so much love. Every expecting family should be given clear understanding of the risks. We're so proud of her & love being her mummy & daddy."

Pregnant & working in early years education/care? Do you know the risks of CMV? It's the leading cause of birth defects & is often found in #childcare settings. Childcare/nursery managers should inform staff of the increased risk of CMV during #pregnancy https://bit.ly/36J9uMD

Who we help

Pregnant Women

Pregnant Women

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Families

Families

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Families

Working with Small Children

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Health Professionals

Health Professionals

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