What is CMV?

CMV, or Cytomegalovirus, is a common virus that can infect people of all ages. Once CMV is in a person’s body, it stays there for life. Most healthy adults and children who become infected will have no signs or symptoms and no long term effects from CMV. It can however pose serious risks to unborn babies if a pregnant woman catches it for the first time. Congenital CMV is when a baby has been infected before birth. It is one of the leading causes of hearing loss in children and one of the main causes of childhood disability.

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2 to 3

babies everyday will be damaged by CMV

1 in 5

children with the virus will develop permanent problems due to CMV

25%

of child hearing loss is caused by CMV infection

Reducing the Risk

Avoid sharing cutlery and cups

Avoid putting things in your mouth that have just been in a child’s mouth. When possible, try not to share food, cups or cutlery, or put your child’s dummy in your mouth.

Wash any items which may have been in contact with a child’s saliva or urine.

Wash hands

Wash your hands after contact with a child’s urine or saliva. For example, try to make a habit of cleaning your hands after changing a nappy, feeding a child or wiping a child’s nose or mouth.

Wash your hands well for 20 seconds with soap and water. If you do not have access to soap and water, use hand sanitiser.

Avoid Kissing on the Mouth

Avoid getting saliva in your mouth when kissing a child. You can do this by trying to give more kisses on the head, together with a big hug.

Our Recommendations

Wash Hands

Advice

Risk reduction advice should be routinely given to pregnant women.

Guidelines

Guidelines

Produce and implement clinical guidelines and pathways for testing, improved diagnosis and management of cCMV.

Screening

Targeted Screening

Targeted screening for cCMV in children who fail a newborn hearing test to enable affected children to receive treatment much sooner.

Treatment

Universal Screening

Universal screening for cCMV to enable affected children to receive treatment much sooner.

Research

Research

Invest in research to support clinical decision making.

Vaccine

Vaccine

Develop a vaccine to end CMV. Eradicate CMV once and for all.

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Diagnosis at birthOur Stories

Paul

July 2013 My son was born at 12.18am on the 28th July 2013 after what I…
Diagnosis as a childOur Stories

Lynda & Imogen

Lynda’s daughter looked perfectly healthy when she was born. Six months later Lynda noticed she…
Diagnosis as a babyOur Stories

Chloe

January 1999 On the 20th January 1999 our lives changed forever. Our second daughter Chloe…
Diagnosis as a childOur Stories

Joshua

2001 When our youngest son was born in 2001, apart from a little jaundice he…
Diagnosis as a babyOur Stories

Evalyn

December 2013 This is our Evalyn Rose, she was a long awaited baby.  My husband…
AsymptomaticDiagnosis as a babyOur Stories

Lexi

I had a very normal, straightforward pregnancy. Other than towards the end, my bump wasn't…
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Get Involved

Fundraise

Fundraising

We do not receive any government funding and it costs our charity £20,000 a year to help and support families affected by CMV.

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Volunteer

Volunteering

CMV Action is a small charity with only 2 part time employees but we potentially need to reach every one of the 750,000 women who give birth in the UK every year. Find out ways to volunteer with CMV Action..

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Raise Awareness

Raising Awareness

At CMV Action our mission is to limit the devastating impact of CMV for those currently affected and for future generations. We offer advice and support to anyone affected by congenital CMV and we work with medical professionals, support research and raise awareness of the virus.

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Latest Tweets

NICE guidelines recommend that women know about CMV. Does your midwife training give you the info you need? Our I-learn module was developed with the RCM. The 1 hr module has facts about CMV & 4 key areas where midwives can help . https://bit.ly/3BhhPnG #CMVaware

It might be a heatwave but we're thinking ahead & wondering about producing some charity Christmas cards & a calendar. It would be super helpful if you could drop us a comment & let us know if you would be likely to buy to help us raise funds. Thank you for your support

Summer ice creams are so lovely but don't share with your baby/toddler if pregnant. Reduce the risk of CMV whilst #pregnant by not putting things in your mouth that have just been in a child’s mouth. CMV poses serious problems to unborn babies. #StopCMV https://bit.ly/3xINFHt

Who we help

Pregnant Women

Pregnant Women

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Families

Families

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Families

Working with Small Children

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Health Professionals

Health Professionals

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