Our Stories

     
Our family consists of my husband, Yoav, and our two daughters, Maya and Leila. Our youngest daughter, Leila, was born with congenital cytomegalovirus (cCMV) and has unilateral hearing loss as a result. Our beautiful girl was born without complications on a wonderful February day in 2014. The only niggle was that she failed her newborn hearing...
In my 1st pregnancy with my energetic lovely little boy Leo, I found out at 38 weeks that I had a liver condition affected by the pregnancy hormones called Cholestasis.  This can cause stillbirth so they induced me at that time.   Leo was healthy and born at over 8 pounds and has been happy and healthy ever since! I was told I...
Ava_P_CMV
I found out at my 20 week scan that something wasn't quite right with my little girl. We were told her cerebellum in her brain was missing, and that this would affect her mobility and she would have learning difficulties, and we were referred to UCH hospital in London.    That crushed me - her brain. There's nothing they can do...
Ours is a relatively simple story, so whilst it is great that the media portray worst case scenarios, it's good to realise that the number one effect is hearing loss, which is the only thing that Ava was affected with as a result of CMV. Ava was our second born daughter in May 2011. My pregnancy was fairly complicated from the outset with...
Alfie-CMV-Story
I wanted to share my CMV story, this is my wonderful little boy Alfie. I had a normal pregnancy and labour, I had Alfie at 11.30 at night and the next morning got him ready to take home. The doctor came round he had a purple rash under his skin an enlarged liver and spleen and was shaking has his blood sugars were low. We had to stay for more...

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Our Stories

Joshua_newborn_CMV
When our youngest son was born in 2001, apart from a little jaundice he seemed 'normal'. It was only as time passed and developmental milestones were not reached, that concerns began. He... Read more
I found out I was pregnant just after my 21st birthday in May 2003. I wasn't sick or felt ill. As far as I knew, the pregnancy was going fine. As this was my first pregnancy, I didn't... Read more

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